Growing up, Lexi Waggoner instinctively knew what to do when her little brother Luke had seizures at home.She’d hold his hand and talk to him during the sudden stiffness or muscle spasms and blank stare. She made sure he wasn’t choking. She stayed …
Children and teens with Dravet syndrome, a rare form of epilepsy, have new hope following treatment with an investigative therapy that alters the effects of the genetic abnormality responsible for their condition.Following treatment, children …
Cook Children’s Medical Center – Prosper has opened its Epilepsy Monitoring Unit (EMU), allowing children experiencing seizures to receive integrated care closer to their homes and communities. The unit is similar to the EMU at the Jane and John …
By Amber KaiserShanley Stuteville, 25, has been a lifelong patient at Cook Children’s after she was diagnosed with epilepsy at 3 years old. When she was 19, she underwent life-changing lesionectomy surgery and hasn’t had a seizure since 2020. This …
By Amber KaiserOne in 26. That’s the number of people who will develop epilepsy in their lifetime. Each November, Cook Children’s Comprehensive Epilepsy Program creates original T-shirt designs to raise epilepsy awareness. This year’s theme is …
By Ashley AntleChildren with a rare and difficult-to-control form of epilepsy called Dravet syndrome have new hope thanks to landmark research data showing the effectiveness of an RNA-based medicine, STK-001, to improve seizure control and modify …
By Jean YaegerWhenever Luke Waggoner’s seizures start ramping up, his mom Ami can make a switch on her phone that changes the rhythm of electrical activity delivered to his brain.Inside Luke’s body is a network of tech devices and wires – running …
By Charlotte SettleCooper Jeffcoat was a 15-year-old sophomore in high school when his life changed forever. He had a passion for skateboarding and dreams of joining the military or attending the police academy after graduation. “All of a …
By Jean YaegerIn 2013, Ann Marie Woodruff was involved in a severe traffic accident that crushed her skull. Eight years later, her ongoing path of recovery took a new twist when she had a seizure and was diagnosed with epilepsy.November is Epilepsy …
Cook Children's is hosting a short film screening and virtual discussion on Nov. 8 at the Modern Art Museum of Fort Worth to raise awareness for Epilepsy Awareness Month. Join us for “Under the Lights,” an inspiring story about a teen with …
This mural, depicting Fort Worth's rich culture and vibrant identity, will welcome patients at the new Jane and John Justin Institute for Mind Health, which is set to open in October 2023. The Justin Institute will bring together nine …
By Ashley AntleTo many parents and their children, M. Scott Perry, M.D., head of Neurosciences at the Jane and John Justin Institute for Mind Health at Cook Children’s, is best known as an epileptologist. One who isn’t afraid to take on rare and …
Sunday, March 26, 2023 is Epilepsy Awareness Day to spotlight this neurological condition that affects nearly 50 million people worldwide. People are encouraged to wear purple. By Ashley AntleThere was a time when constant seizures plagued …
Fort Worth, Texas - Groundbreaking research at Cook Children’s Health Care System could help doctors around the globe precisely identify which part of the brain is causing seizures in children with epilepsy. The Neurosciences Research Center at Cook …
Multiple times each night, as Baylie Williams sleeps, sudden electrical bursts in her brain will misfire and send the 4-year-old girl into seizures.Her head and arms lift. Her eyes open, turned to the side. Her body goes rigid and she loses bladder …
Students at Paschal High School in Fort Worth used their school spirit to raise awareness of epilepsy on Thursday night. The school dedicated its ‘Senior Night’ football game at Farrington Field to the common disorder in recognition of …
If you’re out and about in Fort Worth this evening, you may notice some recognizable landmarks glowing purple. While it’s not uncommon to see the city awash in this color in support of TCU’s Horned Frogs, there’s a different …
A new clinical trial has the potential to offer new hope to children living with SCN8A Developmental and Epileptic Encephalopathy (SCN8A-DEE). It is the first ever trial for an SCN8A-specific treatment modality, and Cook Children’s Medical …
Luke Waggoner’s epileptic seizures were getting worse, striking multiple times a day sometimes in back-to-back clusters that sent him to the hospital.The seizures caused the 13-year-old Arlington boy to jerk or jump uncontrollably. He might …
The decision to choose brain surgery is never easy for a parent.But for some patients with severe seizures who have not responded to medications or who have had significant side effects with medications, epilepsy surgery might be the best option. …
Today is SCN2A Awareness Day, a day recognizing a rare cause of epilepsy, intellectual disability, and autism. The SCN2A gene is found on chromosome 2 position 24.3, thus the significance of 2/24.To help raise awareness of this rare genetic cause of …
Seizures aren’t as uncommon as one might think. In fact, one in 26 people in the United States will develop epilepsy at some point in their lifetime, according to the Epilepsy Foundation. Apply that statistic to a typical school classroom, …
Seventeen-year-old Virginia Cooper is patiently awaiting acceptance into her dream college. This, a long-awaited hope for her family and neurologist, after 16 years of suffering from seizures. “Virginia has intractable localization …
Cook Children’s Medical Center is the first pediatric hospital in the DFW Metroplex to implant a potentially life-changing treatment device in a patient suffering from epilepsy. On Wednesday, Nov. 4, 13-year-old Wyatt Keele of Lavaca, Ark., …
A seizure can happen anytime, anywhere to anyone. That’s why Cook Children’s Medical Center is on a mission to increase awareness about seizures and their many subtleties. In November, the medical center is rolling out the Epilepsy …
NBC 5 helped us kick off Epilepsy Awareness Month last night with a feature story about a Cook Children’s patient who’s now three years seizure free thanks to a groundbreaking clinical trial.Miller Queen suffers from a severe and …
Beginning Nov. 1, landmarks across Fort Worth will light the skyline purple, the official color of epilepsy awareness, in partnership with Cook Children’s. Each year, the Jane and John Justin Neurosciences Center at Cook Children’s …
“I went to the hospital on a warm summer day with fear in my heart, I felt some dismay. The registrar said, with a smile on her face, ‘Let me show you your room, it’s a very nice place.’”
For most of her 20 years, …
The world is buzzing about the release of the latest film in the Star Wars saga “The Rise of Skywalker” set to hit the big screen tonight. Earlier this month, Disney released a statement with the Epilepsy Foundation warning viewers …
Aaden Balderamos hops up and down, squealing with joy as the bubbles float into the air.
"Bubbles. Bubbles. Up. Up. Pop!"
The nurse taking Aaden's vitals before his doctor's appointment can't help but smile too. She's …