By Ashley AntleTo many parents and their children, M. Scott Perry, M.D., head of Neurosciences at the Jane and John Justin Institute for Mind Health at Cook Children’s, is best known as an epileptologist. One who isn’t afraid to take on rare and diff...
Sunday, March 26, 2023 is Epilepsy Awareness Day to spotlight this neurological condition that affects nearly 50 million people worldwide. People are encouraged to wear purple. By Ashley AntleThere was a time when constant seizures plagued 4-year-old...
Fort Worth, Texas - Groundbreaking research at Cook Children’s Health Care System could help doctors around the globe precisely identify which part of the brain is causing seizures in children with epilepsy. The Neurosciences Research Center at Cook ...
Multiple times each night, as Baylie Williams sleeps, sudden electrical bursts in her brain will misfire and send the 4-year-old girl into seizures.Her head and arms lift. Her eyes open, turned to the side. Her body goes rigid and she loses bladder c...
Students at Paschal High School in Fort Worth used their school spirit to raise awareness of epilepsy on Thursday night. The school dedicated its ‘Senior Night’ football game at Farrington Field to the common disorder in recognition of Epilepsy Aware...
If you’re out and about in Fort Worth this evening, you may notice some recognizable landmarks glowing purple. While it’s not uncommon to see the city awash in this color in support of TCU’s Horned Frogs, there’s a different reason for the lights shi...
A new clinical trial has the potential to offer new hope to children living with SCN8A Developmental and Epileptic Encephalopathy (SCN8A-DEE). It is the first ever trial for an SCN8A-specific treatment modality, and Cook Children’s Medical Center may...
Luke Waggoner’s epileptic seizures were getting worse, striking multiple times a day sometimes in back-to-back clusters that sent him to the hospital.The seizures caused the 13-year-old Arlington boy to jerk or jump uncontrollably. He might fall back...
The decision to choose brain surgery is never easy for a parent.But for some patients with severe seizures who have not responded to medications or who have had significant side effects with medications, epilepsy surgery might be the best option. The...
Today is SCN2A Awareness Day, a day recognizing a rare cause of epilepsy, intellectual disability, and autism. The SCN2A gene is found on chromosome 2 position 24.3, thus the significance of 2/24.To help raise awareness of this rare genetic cause of ...
Seizures aren’t as uncommon as one might think. In fact, one in 26 people in the United States will develop epilepsy at some point in their lifetime, according to the Epilepsy Foundation. Apply that statistic to a typical school classroom, church, wo...
Seventeen-year-old Virginia Cooper is patiently awaiting acceptance into her dream college. This, a long-awaited hope for her family and neurologist, after 16 years of suffering from seizures. “Virginia has intractable localization related epilepsy o...
Cook Children’s Medical Center is the first pediatric hospital in the DFW Metroplex to implant a potentially life-changing treatment device in a patient suffering from epilepsy. On Wednesday, Nov. 4, 13-year-old Wyatt Keele of Lavaca, Ark., underwent...
A seizure can happen anytime, anywhere to anyone. That’s why Cook Children’s Medical Center is on a mission to increase awareness about seizures and their many subtleties. In November, the medical center is rolling out the Epilepsy Foundation’s Seizu...
NBC 5 helped us kick off Epilepsy Awareness Month last night with a feature story about a Cook Children’s patient who’s now three years seizure free thanks to a groundbreaking clinical trial.Miller Queen suffers from a severe and debilitating form of...
Beginning Nov. 1, landmarks across Fort Worth will light the skyline purple, the official color of epilepsy awareness, in partnership with Cook Children’s. Each year, the Jane and John Justin Neurosciences Center at Cook Children’s makes it a priorit...
“I went to the hospital on a warm summer day with fear in my heart, I felt some dismay. The registrar said, with a smile on her face, ‘Let me show you your room, it’s a very nice place.’”
For most of her 20 years, Shanley Stuteville has been a pat...
The world is buzzing about the release of the latest film in the Star Wars saga “The Rise of Skywalker” set to hit the big screen tonight. Earlier this month, Disney released a statement with the Epilepsy Foundation warning viewers that certain scene...
Aaden Balderamos hops up and down, squealing with joy as the bubbles float into the air.
"Bubbles. Bubbles. Up. Up. Pop!"
The nurse taking Aaden's vitals before his doctor's appointment can't help but smile too. She's blowing the bubbles as she...
Sitting outside of a movie theater, Damian Wells hoped he’d embarrassed himself for the last time.
Moments earlier, the 15-year-old Weatherford, Texas teen was watching a movie with his younger sisters when all of the sudden, a fit of cursing and ...
Getting ready for a new school year means more than new school supplies and shoes for kids with epilepsy. For these kids and their caregivers, it also means making sure school staff are ready if a child has a seizure while at school.
Making a scho...
Today, Owen Turner struggles to pick up a Cheerio or throw a football with his right hand.
But other than that it would be hard to notice a difference in him and any other 5-year-old boy after becoming the first child at Cook Children's to underg...
Feb. 28 is Rare Disease Day. But you might be surprised to learn many of these diseases really aren’t as “rare” as you might think.
A rare disease is defined as any disease affecting fewer than 200,000 people in the U.S.1 While individually, each ...
This is the third part of a series as we follow a Cook Children's patient through the art of treating epilepsy.
Click here for the first part of the series and here for the second part.
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This is the second in a series as we follow a Cook Children's patient and the art of treating epilepsy. Click here to read the first part of the series.
Welcome to the First in a SeriesMore than 3.4 million people in the US live with active epilepsy and over 150,000 new cases are diagnosed each year. It sounds astonishing, but 1 in 26 people will develop epilepsy in their lifetime and over one-third ...
Last week Netflix released their newest movie, “The After Party,” a film that chronicles the story of an aspiring young rapper suffering with epilepsy.
Struggling to make it in the music industry, he gains notoriety when he has a seizure on stage...
NBC DFW - Saleem Malik, M.D. came to the U.S. with a dream of pursuing advanced medicine. He's now one of the state's top pediatric neurologists & runs a special lab at Cook Children's (1 of only 3 of its kind in Texas) where he's able to detect spot...
While most of us know Fenfluramine as one of two components in a notorious weight loss drug, researchers are finding it has remarkable potential for the treatment of rare genetic epilepsy syndromes.
Cook Children’s recently participated in multice...