Checkup Newsroom (Epilepsy)

2019
November
25,
2019
| 06:29 PM America/Chicago
Aaden Balderamos hops up and down, squealing with joy as the bubbles float into the air. "Bubbles. Bubbles. Up. Up. Pop!" The nurse taking Aaden's vitals before his doctor's appointment can't help but smile too. She's blowing the bubbles as she...
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November
22,
2019
| 09:11 PM America/Chicago
Sitting outside of a movie theater, Damian Wells hoped he’d embarrassed himself for the last time. Moments earlier, the 15-year-old Weatherford, Texas teen was watching a movie with his younger sisters when all of the sudden, a fit of cursing and ...
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August
14,
2019
| 05:10 PM America/Chicago
Getting ready for a new school year means more than new school supplies and shoes for kids with epilepsy. For these kids and their caregivers, it also means making sure school staff are ready if a child has a seizure while at school. Making a scho...
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July
02,
2019
| 11:23 PM America/Chicago
“I went to the hospital on a warm summer day with fear in my heart, I felt some dismay. The registrar said, with a smile on her face, ‘Let me show you your room, it’s a very nice place.’” For most of her 20 years, Shanley Stuteville has been a pat...
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March
01,
2019
| 06:28 PM America/Chicago
Today, Owen Turner struggles to pick up a Cheerio or throw a football with his right hand.  But other than that it would be hard to notice a difference in him and any other 5-year-old boy after becoming the first child at Cook Children's to underg...
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February
28,
2019
| 05:49 PM America/Chicago
Feb. 28 is Rare Disease Day. But you might be surprised to learn many of these diseases really aren’t as “rare” as you might think. A rare disease is defined as any disease affecting fewer than 200,000 people in the U.S.1 While individually, each ...
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2018
November
27,
2018
| 08:38 PM America/Chicago
This is the fourth part of a series. To view the previous articles, please click here: Part 1 Part 2 Part 3  ...
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November
20,
2018
| 05:27 PM America/Chicago
This is the third part of a series as we follow a Cook Children's patient through the art of treating epilepsy.  Click here for the first part of the series and here for the second part. ...
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November
13,
2018
| 09:39 PM America/Chicago
This is the second in a series as we follow a Cook Children's patient and the art of treating epilepsy. Click here to read the first part of the series. ...
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November
06,
2018
| 05:15 PM America/Chicago
During the last month of Stephanie Balderamos’ pregnancy, a routine prenatal screening found cause for alarm. The tests showed some abnormality with her baby’s heart. Doctors agreed Stephanie’s baby would need more testing once he was born. Fol...
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September
03,
2018
| 03:15 AM America/Chicago
Last week Netflix released their newest movie, “The After Party,” a film that chronicles the story of an aspiring young rapper suffering with epilepsy. Struggling to make it in the music industry, he gains notoriety when he has a seizure on stage...
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August
09,
2018
| 11:30 PM America/Chicago
NBC DFW - Saleem Malik, M.D. came to the U.S. with a dream of pursuing advanced medicine. He's now one of the state's top pediatric neurologists & runs a special lab at Cook Children's (1 of only 3 of its kind in Texas) where he's able to detect spot...
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July
13,
2018
| 10:43 PM America/Chicago
While most of us know Fenfluramine as one of two components in a notorious weight loss drug, researchers are finding it has remarkable potential for the treatment of rare genetic epilepsy syndromes. Cook Children’s recently participated in multice...
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June
25,
2018
| 08:16 PM America/Chicago
The FDA has approved the first cannabinoid-based treatment for rare, severe forms of epilepsy. Greenwich Biosciences (GW Pharma) received the approval for Epidiolex, an oil-based purified cannabidiol (CBD), studied specifically in two rare epileps...
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June
19,
2018
| 10:43 PM America/Chicago
“The Incredibles 2” scored the biggest domestic debut ever for an animated movie, making more than $180 million since its release on June 15. With a 14-year hiatus between the original and the sequel, audiences were more than eager to see the Parr fa...
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April
23,
2018
| 09:22 PM America/Chicago
Texas Tribune - In 2015, Texas passed the Compassionate Use Act, legalizing the sale of a specific type of cannabis oil for epilepsy patients whose symptoms have not responded to federally approved medication. The first Texas dispensaries are now ...
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April
19,
2018
| 11:31 PM America/Chicago
An epilepsy treatment derived from the cannabis plant took a major step toward approval from the Food and Drug Administration today. Epidiolex, an oil-based purified cannabidiol (CBD), has been studied specifically in two rare epilepsy syndromes - Le...
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February
23,
2018
| 08:23 PM America/Chicago
SCN2A is a gene found on chromosome 2 position 24.3 and thus 2/24 is celebrated as SNC2A Awareness Day worldwide. A rare cause of epilepsy, SCN2A mutations have also been discovered as a cause for intellectual disability and autism. To raise awarenes...
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February
09,
2018
| 04:03 PM America/Chicago
February 9 marks SNC8A Awareness Day worldwide. A rare cause of refractory epilepsy, SCN8A mutations have now been described in over 250 patients worldwide and several receive their care at Cook Children’s. To raise awareness of this rare genetic cau...
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February
05,
2018
| 09:46 PM America/Chicago
What would you do to save your child? Would you travel across the world? Would you leave your family behind? Sell everything you own? Give the shirt off your back? Diego and Tatiana Alvarez did all those things to help their son Mirko in his battl...
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February
01,
2018
| 04:13 PM America/Chicago
WFAA - News broke Monday that Texas' first medical marijuana dispensary will open on Feb. 8, near — where else — Austin. Compassionate Cultivation will be the first of the three licensed dispensaries to open in the state, but will be followed, in ...
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January
31,
2018
| 09:27 PM America/Chicago
The Texas Compassionate Use Act (Senate Bill 339) was signed by Gov. Greg Abbott and became effective June 1, 2015. The bill required the Texas Department of Public Safety to create a secure registry of physicians who treat epilepsy for the purpose o...
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2017
November
29,
2017
| 04:21 PM America/Chicago
It may be the scariest condition you’ve never heard of: Sudden Unexplained Death in Epilepsy (SUDEP) The Epilepsy Foundation describes SUDEP as “the sudden unexpected death of someone with epilepsy, who was otherwise healthy.” No other cause of de...
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November
17,
2017
| 05:21 PM America/Chicago
More than 65 million people in the world live with epilepsy and every one of those people have their own story. When Scott Perry, M.D., an epileptologist and medical director of Neurology, talks about his patients, the one word that comes up over ...
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November
06,
2017
| 09:46 PM America/Chicago
You may be surprised to learn that 1 in 26 people in the world will develop epilepsy at some point in their lifetime. Despite those numbers, so much mystery still remains about this neurological disorder that can affect people of all ages. Many...
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November
06,
2017
| 09:41 PM America/Chicago
Scott Perry, M.D., sighs and takes a deep breath when thinking about the teenagers with epilepsy he treats at Cook Children's Jane and John Justin Neurosciences Center. "Older kids are the worst. They are invincible when they are teenagers and now...
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November
01,
2017
| 09:46 PM America/Chicago
Cook Children’s patients, families and staff came together on Wednesday, Nov. 1, to kick off Epilepsy Awareness Month on the lawn in front of the medical center. But it was one of the people who could not be at the event that was the cause for cel...
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October
03,
2017
| 06:36 PM America/Chicago
Could a component of the diet pill “fen-phen” be the answer for patients with a severe form of epilepsy known as Dravet syndrome? Fenfluramine was originally used as a weight-loss drug before being pulled from the market in 1997 with reports that ...
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August
03,
2017
| 05:50 PM America/Chicago
WFAA - In many ways, Kadience Mulanax is like any other 7-year-old girl who loves t-ball and cell-phone video games. There is a part of her life her parents wish they could change, for her sake. "I don’t know that she’s ever had a time where she’...
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July
12,
2017
| 11:57 PM America/Chicago
NBC DFW - There is more proof that some forms of medical marijuana can safely treat certain disorders. The Food and Drug Administration has published results of an ongoing study that found cannabis oil can dramatically decrease the number of seizu...
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