With a little bit of teasing and a lot of affection, siblings Anyah and Cobus Johnson like to talk about how much they have in common.Anyah, 13, and 11-year-old Cobus share the same friends and favorite games. They even share identical blood and …
World Sickle Cell Awareness Day falls on June 19, a time to highlight new advances in treating the genetic disorder.Two Cook Children’s patients underwent gene-editing therapy for sickle cell disease (SCD) in 2024 through a clinical trial. The goal …
Whenever his lower back started to throb, Triston Tate knew a full-blown pain crisis was about to hit as a result of Sickle Cell Disease (SCD).The pain would spread to his knee or arm, pulsing like a heartbeat. Prescription pain medication didn’t …
By Jean YaegerHer whole life, 19-year-old Ashlynn Malone has struggled with fatigue, outbreaks of severe pain, and hospitalizations due to sickle cell disease (SCD). That’s why Ashlynn jumped at the chance to join a clinical trial designed to …
By Jean YaegerSickle cell disease (SCD) can cause damage to blood vessels in the brain, putting children as young as age 2 at risk for stroke.That’s why patients with certain types of SCD need preventive screenings called transcranial doppler …
By Ashley AntleWhen the Ray family embarked on a cruise in April to celebrate Caleb Ray’s 18th birthday, their focus was on celebrating a milestone, not the sickle cell disease Caleb has lived with since being diagnosed shortly after …
By Linda GoelzerA recently approved drug is giving hope to younger patients living with sickle cell disease (SCD). Crizanlizumab is intended to reduce the frequency of pain crises and limit hospitalization in adult and pediatric patients ages 16 and …
By Heather DugeFour-year-old Winnie Babalola smiles all the time and talks nonstop. But it wasn’t always that way.Diagnosed with Sickle Cell Disease at two weeks old, Winnie faced a condition that can cause damage to organs and intense pain …
Sickle Cell Awareness Month is recognized each September. For many of the more than 100,000 Americans living with the disease, acute painful episodes and chronic pain happen year-round. As if living with sickle cell disease (SCD) isn’t tough …
Every time competitive dancer Kambri Gaut takes the stage—whether hip-hop dancing, tapping or clogging—she transforms into a silent warrior.The audience can’t see the battle that may be raging inside her as she moves to the music. …
Sickle Cell Disease (SCD) causes an abnormal shape of the red blood cells. The red blood cells are shaped like crescents instead of circles. They don’t last long and they can get stuck in the blood vessels, which blocks the blood …
Are you between 18-44? You could save a life through the Be The Match program. Joining the Be The Match Registry means volunteering to be listed as a potential blood stem cell donor, ready to save the life of any patient in need of a …