Raising Joy Podcast: Finding Your Way Back to Joy After a Complex Medical Diagnosis
Listen to Episode 55 of the Raising Joy podcast on Apple Podcasts, Spotify and Google Podcasts. The podcast is part of the JOY Campaign, which launched in April 2021 as a suicide prevention communication initiative, and aims to reach parents through honest conversations about the mental wellbeing of children and teens.
Managing emotions as a parent when your child receives a complex medical diagnosis can be incredibly challenging. In this episode of Raising Joy, we talk to Katie Senter, a member of the Family Advisory Council at Cook Children's. Katie's daughter, Louise, has a very rare medical condition called 1p36 deletion syndrome, which is a chromosome disorder that typically causes severe intellectual disability.
Katie shares her personal experiences of coping with Louise's diagnosis, and offers practical advice on how other parents can manage their own emotions during this difficult time. She also talks about the importance of finding support from other parents who are going through similar experiences.
If you're a parent who is struggling to cope with your child's complex medical diagnosis, this episode is for you. Katie's story is both inspiring and informative, and her advice can help you on your own journey.
Listen to this episode of Raising Joy to learn more about:
- Katie's experience of receiving Louise's diagnosis and how she coped with her emotions.
- Practical advice on how to manage your own emotions as a parent of a child with a complex medical diagnosis.
- The importance of finding support from other parents who are going through similar experiences.
Raising Joy is part of Cook Children’s Health Care System’s Joy Campaign, a communications initiative aimed at preventing youth suicides. For more information about the Joy Campaign, visit cookchildrens.org/joy.
About Cook Children's
Cook Children’s Health Care System embraces an inspiring Promise – to improve the health of every child through the prevention and treatment of illness, disease and injury. Based in Fort Worth, Texas, we’re proud of our long and rich tradition of serving our community. Our not-for-profit organization is comprised of nine companies, including our Medical Center, Physician Network, Home Health company, Northeast Hospital, Pediatric Surgery Center, Health Plan, Health Services Inc., Child Study Center and Health Foundation. With more than 60 primary, specialty and urgent care locations throughout Texas, families can access our top-ranked specialty programs and network of services to meet the unique needs of their child. For 100 years, we’ve worked to improve the health of children from across our primary service area of Denton, Hood, Johnson, Parker, Tarrant and Wise counties. We combine the art of caring with leading technology and extraordinary collaboration to provide exceptional care for every child. This has earned Cook Children’s a strong, far-reaching reputation with patients traveling from around the country and the globe to receive life-saving pediatric care. For more information, visit cookchildrens.org.