Running around too much or getting too hot used to trigger seizures several times a week for 8-year-old Sebastian Ruiz.But since he started new investigational treatment through a clinical study at Cook Children’s, the seizures happen less often -- …
World Sickle Cell Awareness Day falls on June 19, a time to highlight new advances in treating the genetic disorder.Two Cook Children’s patients underwent gene-editing therapy for sickle cell disease (SCD) in 2024 through a clinical trial. The goal …
By Jean YaegerHer whole life, 19-year-old Ashlynn Malone has struggled with fatigue, outbreaks of severe pain, and hospitalizations due to sickle cell disease (SCD). That’s why Ashlynn jumped at the chance to join a clinical trial designed to …
By Jean YaegerGrey Gutierrez has a rare genetic disorder that makes his muscles weak, but he doesn’t let Duchenne muscular dystrophy (DMD) keep him off the playground.The spunky San Antonio 9-year-old uses a wheelchair at school to get from …