Cook Children's patient braves rare chronic pain syndrome

San Angelo Standard-Times - Sometimes when water touches her skin, the feeling is comparable to burning acid, said San Angeloan Madisyn Metaxas.

Madisyn, 19, has suffered outbursts of pain that, at times, left her entertaining the idea that her life was too agonizing to continue.

“Here I am at the edge of 16 not being able to walk and my legs were on fire,” she said. “My legs were swelling up and I felt like my … bones were being crushed. My legs were turning purple, they were turning red. I had black spots all over me. I had white spots all over me, and no one knew what was going on.”

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