Today is Rare Disease Day and we’re sharing the story of one of our patients, 3-year-old Greyson, who was diagnosed with PURA Syndrome when he was 2 years old. Only about 500 people in the world share the same diagnosis.Greyson’s diagnostic odyssey b...
Feb. 28 is Rare Disease Day. But you might be surprised to learn many of these diseases really aren’t as “rare” as you might think.
A rare disease is defined as any disease affecting fewer than 200,000 people in the U.S.1 While individually, each ...