What is photosensitivity?

Photosensitivity is a phenomenon that occurs in approximately 3% of people with epilepsy, so this risk impacts a small percentage of people with epilepsy overall. For those with photosensitivity, exposure to certain patterns and frequencies of flashing light over a period of time may induce a seizure. For many, the trigger can be very specific and vary from person to person – certain colors or wavelengths of light, particular frequencies (often between 5-30 flashes per second), and specific patterns could be triggers.

Movies with flashing lights aren’t the only potential photic triggers in our environment. Other potential examples include:

• Strobe lights used at dances or when part of fire alarms
• Sunlight flickering off water, shining through Venetian blinds or through roadside trees
• Lights hanging down through bridges or tunnels
• Television or computer screens with rolling images

How do you know if you are photosensitive?

The easiest way to know if you are at risk for photosensitivity is through electroencephalogram (EEG) results. Often, as part of the EEG exam, patients are exposed to strobe lights at various frequencies during the study. The neurologist reviews the EEG to see if there were changes to the brainwave pattern during the lights suggesting a higher risk of seizures. This is called a photoparoxysmal response (see the image to the right). If that pattern is present, sometimes the technicians will then repeat the test using colored filters over the strobe light to see if they can make the trigger disappear. If they can, some people can wear polarized colored glasses to filter out the triggering light and avoid the photic response.

Certain epilepsy syndromes are known to have a higher association with photosensitivity. These include the idiopathic generalized epilepsies and some named syndromes below.

• Dravet Syndrome
• Juvenile Myoclonic Epilepsy
• Jeavons Syndrome
• Sunflower Syndrome
• Unverricht-Lundborg Disease

What steps can you take to avoid photic-induced seizures?

Disney did not indicate which scenes in the film may contain potential photic triggers, so the viewer must remain aware of potential triggers. There are multiple easy steps people can take to avoid photic triggers and still enjoy the film and other environments where photic triggers may be present.

• Close one or both eyes and look away during scenes with sustained flashing lights.
• If you are playing a video game or watching TV/movie and you start to get jerks in your arms/legs, turn away from the screen immediately.
• Use computer screens with glare guards.
• Turn off the autoplay features on social media (videos can automatically play on social media platforms that have strobe effects and may trigger seizures) – not sure if we want to comment on the court case Monday of Kurt Eichenwald who -was the victim of a strobe attack.
• Turn down the brightness of TV/computer screens.

While photosensitivity can be a seizure trigger for some people with epilepsy, it should not be a deterrent from enjoying these activities. Being aware of the potential for photic triggers and taking steps to avoid sustained exposure can help prevent seizures while still enjoying the event.

So go forth, grab a popcorn, and enjoy the movie – and may the Force be with you!

That is why when Cook Children's asked me to write something about what Star Wars means to me today, what with it being Star Wars Day (May the 4th Be With You), I may or may not have squealed and jumped up and down (while sitting in full Han Solo costume, of course)!

Star Wars was a fun movie series that I started watching in my teens. None of my friends were into it...my family didn't seem to care much about it...but I loved it! What a fun story about a galaxy far, far away!

It got my mind out of the stress of college and medical school. The characters were fun, hilarious, and sometimes complicated. The plot was always fast and the lines between good and evil were so clearly drawn (and yet...sometimes not so clear?)

Let's face it. Star Wars, like any well-made movie series, is a great way to escape.

Now that I have kids, Star Wars is even more fun. While they're still young and the movies may be still a little too scary for them, my son and I have racked up HOURS of conversations about why Darth Vader (um only the coolest guy ever to a 4-year-old) is on the Dark Side, who gets to own a lightsaber, and what kind of creature is Jabba the Hutt? Halloweens are full of fun costumes.

I have found that Star Wars has been such a fun connection to have with my patients, too! When a shy 5-year-old will not make eye contact with me all I have to do is pretend that tongue depressor is a lightsaber and....we're besties having a lightsaber fight!

And I publicly apologize to the mother of the 8-year-old last week who had to endure a conversation her son had with me about the shocking events of "The Last Jedi" for the entirety of his check-up 

And I'm not the only one! I've connected with so many other Cook Children's providers who are die-hard fans, too! NP Tara, Dr. Peak, Dr. Gray, Dr. Perry, I'm looking at you ...

And I mean, is there any better way to live your life than by the quotes of the Master Yoda? "The greatest teacher, failure is," is my new mantra.

Sure, in the end, it's just a dorky movie universe. But is there a more fun way to connect with people you might not otherwise connect with? Loving the same characters, the same story ... it's allowed me to grow close to others in so many ways.

May the Force Be With You!

Hugs,

Dr. Diane