Growing up, Rebecca Brovina always wanted to be a nurse, just like her grandma. “I have always dreamed of being as successful and cool as she was,” Brovina said. Now, many would say, she is living up to that.

Rebecca Brovina, BSN, RN, CPN, Research Nurse Coordinator at Cook Children’s Pulmonology - Prosper, was just recently awarded the Great 100 Nurses for 2025, highlighting her outstanding contributions in her field.

Nurses are nominated for this award by family members, patients, peers, former teachers, physicians, and administrators. Over the past 34 years, this award has become recognized throughout the nursing community in the Dallas/Fort Worth metroplex as an esteemed honor and prestigious accomplishment.

Rebecca's journey began in the Pediatric Intensive Care Unit (PICU), where she worked closely with John Robertson, M.D. Dr. Robertson was starting research focused on understanding and treating exercise-induced respiratory disorders, and when Rebecca heard about it, her interest was immediately piqued. She almost instantly became a vital part of this dedicated research team.

“Rebecca’s superpowers are intelligence, creativity, empathy, and humor, in equal overflowing measure,” Dr. Robertson said. 

These disorders often lead young athletes to quit sports, which can significantly impact their self-confidence. Rebecca vividly recalls a patient who had to quit all her sports due to an undiagnosed condition and suffered a massive blow to her self-confidence. She found no answers until she visited the Cook Children's Exercise Respiratory Center in Prosper. Rebecca remembers witnessing the relief they experienced when they finally felt heard. As the patient's parent put it, "We finally feel like someone listened to us.”

In February 2025, Rebecca received first place in the 2025 Research Poster Presentation Master's Level at the Texas Chapter of the American College of Sports Medicine. The presentation, Estimating Minute Ventilation and Inspiratory Flow to Trigger Exercise Induced Laryngeal Obstruction (EILO) in Pediatric Patients, also led to the team's first published abstract.

At the exercise respiratory center in Prosper, no two days are exactly the same for Rebecca; there is always a unique blend of patient interaction, education and research. One of her primary roles is educating patients prior to their appointments and administering research surveys. Her work often involves looking for a connection between respiration disorders and other neurological conditions. Rebecca is also heavily involved in writing protocols, giving presentations, and videoing the end of procedures.

The respiratory clinic also uses a method that is only employed in three places in the country. In this method, a scope is inserted through the nose and down into the back of the throat while the patient is running on the treadmill. This novel approach helps discover dynamic changes in the airway that occur during exercise. This cutting-edge and unique approach is something Rebecca loves about her job.

“My favorite part of research is being able to develop things and actually be able to help people,” Rebecca said.

Rebecca’s motivation and her “why” stems from a deeply personal place. Having experienced health challenges herself, including worsening asthma and a spinal cord injury, she understands firsthand how not being able to do the one thing you love can impact a child. Rebecca is so passionate about her job because, as she said, she understands "how mentally and physically damaging it is to not be able to do the one thing that keeps you sane.”

Throughout her career as a nurse, she has also witnessed firsthand, patients not receiving the care they deserve, often due to insurance problems. This fueled her desire to change how people are cared for, develop new solutions, and truly help. Rebecca’s passion can be seen in every interaction and shows her commitment to getting patients back to doing what they love.

“I wrote my thesis on discharge delays," Rebecca said. "I would see kids who would have extended hospital stays simply trying to get the gear and medicine they need.”

Rebecca has truly loved her experience at Prosper. She has relished the opportunity to be a part of opening a brand-new hospital. She contributed to the organization of hospital departments and helped figure out staffing and roles. She says that being part of some of the first research initiatives at Prosper and building something from the ground has been incredibly cool and rewarding, even throughout all of the roadblocks.

Rebecca is driven by her patients, a fact evident in each of her interactions. She is dedicated and passionate about what she does. Congratulations on this very well-deserved award!

By Heather Duge

Since the beginning of 2023, Sheralyn Hartline, DNP, RN, CNEP, RNC-NIC, and Stefanie Tanner, MSN, RN, BCEN, have shifted into leadership roles as part of the opening of Cook Children’s second Medical Center in Prosper, Texas. Both nurses described opening a new facility as a unique experience – one that has challenged them and allowed them to think outside the box. 

“We are here to guide the ship, but the staff took ownership of our processes and ultimately provided the safest, quality care for our patients,” Sheralyn said.

Stefanie said it has been a year of robust learning.

“The community, market and population are very different in Prosper so it’s not just copying and pasting what is being done at the Fort Worth campus,” Stefanie said.

Providing the highest quality care and a one-of-a-kind experience is always at the top of their minds as they know people in Prosper have many options to choose from when looking at hospitals.

“As we enter new territory, it has been increasingly important to be involved in community events and build relationships with leaders in the region,” Sheralyn said.

Sheralyn, assistant vice president for Nursing and Patient Care, and Stefanie, director of Nursing and Patient Care, worked to create and implement processes to improve practices for 200 nurses across multiple departments at the Prosper campus.

“Our teams refined what is working well,” Sheralyn said. “We also found processes that we needed to take back to the drawing board."

One of the projects spearheaded by Morgan Cotton, Clinical Risk/Quality Improvement coordinator and Amanda Pulley, manager of Laboratory Operations, is the Emergency Department and Lab Specimen Integrity Project. The interdisciplinary team worked together to provide solutions for keeping specimen integrity.

Another project led by frontline staff called Difficult IV Access (DIVA) involved collaboration with child life specialists, Advanced Care Technicians and nurses to improve the process for IV placement and infiltrations. Now, a nurse from the DIVA team who is trained to place IVs in patients with difficult access can be called at any time.  

Sheralyn and Stefanie also have supported many educational opportunities on the Prosper campus such as the emergency nurse pediatric course, the trauma nursing core course and crisis prevention intervention, largely driven by clinical practice and advanced education specialist Lucinda Berent.

“It’s a huge plus for staff if they don’t have to travel to Fort Worth or elsewhere to get certifications,” Sheralyn said.

Previously at Cook Children's Medical Center - Fort Worth, Stefanie served in the Emergency Department and Sheralyn led the Level IV NICU. Their different perspectives complement each other well. The dynamic duo communicates with each other from the moment they wake up until going to bed.

“I am a thinker and Sheralyn is a feeler,” Stefanie said. “We are both very outgoing and truly love our jobs. It’s busy and some days are 10 to 14 hours, but when I’m collaborating with Sheralyn, it doesn’t feel like work. I feel like this is what I get to do every day and I’m lucky to get paid for it.”

Sheralyn agrees and says she is blessed to be able to go to a job and do what she loves all day. Her passion for our organization’s Promise is reflected in all that has been accomplished since the opening of the Prosper facility.

“We are so proud of the culture that the team has created in Prosper while using our Promise as the guiding compass,” Sheralyn said.

For over 32 years, we've been hosting this incredible event, welcoming nurses from over 10 states. This year's symposium is packed with informative talks and workshops designed to keep you at the forefront of student health and well-being.

This live, virtual program will help nurses in primary and secondary schools as they face many unique challenges. We hope you take this opportunity to learn from clinical experts in the comfort of your own home and nurses can receive credit hours.

What's on tap? Here's a sneak peek:

• Substance Use in School-Aged Children: Led by Jeff Temple, Ph.D, from the University of Texas Health Science Center at Houston (UTHealth Houston), this session will equip you with the knowledge and tools to address this growing concern.
• From A to Z: We've got you covered on a wide range of topics, including respiratory illnesses, anxiety, managing students with complex medical needs, and more!
• Local Expertise: Diane Arnaout, M.D. of Cook Children's Pediatrics Forest Park, will be sharing her insights on common childhood illnesses.
• First Responders in Action: Gain valuable firsthand knowledge from a panel featuring our Cook Children’s Medical Director for Emergency Services Taylor Louden, M.D., and EMT Joe Garza.
• Protecting Our Students: Learn how to identify and respond to victims of human trafficking with Elizabeth Peeler, D.O.

But wait, there's more!

• Reviews: Here's what past attendees are saying:
  • "This was the best, most thorough conference I have attended in about 5 years!"
  • "I am not from Texas and really appreciate being able to attend this conference! The information was really good"
  • "This is my 7th symposium and it was the best one overall. I learned something useful from each speaker."
• Webinars Throughout the Year: We don't stop at the symposium! Check out our school nurse resource page for info on ongoing webinars.

Ready to join the fun? Register here.

Have questions? Feel free to reach out to meeting and event coordinator Danielle Allsbrook at Danielle.Allsbrook@cookchildrens.org.

We can't wait to see you there! See you in the summer!

Shalyn Coulombe, RN, of Cook Children’s Medical Center – Prosper says spreading joy is one of her favorite things to do.

“I like to add a little happiness and smiles wherever I can,” Coulombe said.

Lately, that place has been the windows of rooms in prep/recovery at Cook Children’s in Prosper so when patients are taken to their pre-operation room the first thing they see is a whimsical character. Coulombe draws characters such as Peaks the Dragon, Bluey, Olaf, Little Mermaid, Moana, Rapunzel and Mario.

Coulombe’s love for drawing began a few years ago during college. While at Disneyland, she visited the animation station and drew Mickey Mouse with a Disney artist. She had no idea her newfound passion would become a highlight of her day at work.

“Being in the hospital can be super scary for children and seeing the characters and familiar faces for a brief moment can bring comfort,” Coulombe said. “For many kids who are having anxiety being in a new place with new people, the art flips the switch and lets them focus on something else.”

Her masterpieces have brought smiles to more than patients and passersby – they are a much-anticipated part of her coworkers’ days. Many of them have young children and have ideas for the next drawing. The team takes part in polls with three options to vote on. Coulombe says it has become a bonding moment for the whole unit.

“I feel like I can make a difference even in the small things like this,” Coulombe said. “It gives a more personal touch to the patient families’ experience and hopefully adds a little magic to their days.”

Patients admitted to the Cook Children’s Neonatal Intensive Care Unit (NICU) can spend days, weeks or months there. No matter the amount of time spent there, the connections built between the tiniest patients, their families and their care teams last a lifetime.

For the first time since 2019, the Cook Children’s NICU hosted its annual reunion on Sunday, April 30 to celebrate those connections.

The NICU reunion allows Cook Children’s former patients and their families to reunite with their care teams, including nurses, physicians, therapists, child life specialists and more. The care teams spend a significant amount of time with their NICU patients and their families while they’re admitted to the hospital and they always look forward to seeing how the former patients are doing after they are discharged from the medical center.

The NICU reunion marks milestones and celebrates the achievements and successes of each of our patients.

Among the over 680 excited attendees was the Dorsey family, who spent 216 days in the Cook Children’s NICU with their son, Bryan.  

Bryan was born at 23 weeks weighing 1 pound, 3 ounces. During his stay in the NICU, he spent the first 100 days of his life on a ventilator, underwent several procedures and received 14 blood transfusions.

“He is a fighter!” said his mother, Natalie Dorsey. “Bryan was discharged from the NICU on one liter of oxygen and feedings via G-Button but was able to move past those supports rather quickly. He is a very healthy 4-year-old who attends school and plays T-ball.”

Dorsey said she looked forward to reconnecting with friends at the 2023 NICU reunion.

“I looked forward to seeing familiar faces of people who made a huge impact in our life,” she said. “The last reunion we went to, Bryan was still on oxygen.”

Dorsey added, “Our NICU friends are still some of my most favorite people. My overall experience with Cook Children’s has been phenomenal. After living the NICU life, I decided to give back as a volunteer and now I’m an employee!"

As the parents as partners coordinator, Dorsey often has the opportunity to share stories from her family’s journey at Cook Children’s. 

“All my best stories come from our NICU days!” she said.

By Eline deBruijn Wiggins

For nearly 40 years, Teddy Bear Transport has extended the reach of the Cook Children’s Promise across the country – literally. This labor of love and commitment has taken patients and medical teams to-and-from Louisiana, Florida, New York, the West Coast and everywhere in between.

With about 4,000 transports each year, the Cook Children’s Teddy Bear Transport fleet is made up of seven ambulances, two fixed-wing aircraft (one jet and one turboprop), and one helicopter.

Most calls are in the Dallas-Fort Worth area, West Texas, East Texas and Oklahoma. The children transported are about 70% pediatric patients and 30% neonatal (less than 30 days old) patients.

“Many times we are their first experience with Cook Children’s and we take pride in being able to bring the very best care, that Cook is known for, to these patients and their families,” said Teddy Bear Transport RT Melinda Austin. “These people are beyond grateful and in some situations in these smaller towns, or sometimes larger cities where they do not have the resources to care for small children, we are their hope and so most people we run into are beyond grateful.”

The transport team brings referral patients to Cook Children’s, many times for the specialty clinics and doctors.

“Referring facilities and families are happy to see us because they know we’re bringing Cook Children’s to them,” said Teddy Bear Transport Director Stacy Putman. “Cook and our team have a great reputation and they’re excited to see us walk through their doors – our teams can feel that relief at times. The hard part is we don’t always have the answers that the families want. We reassure them that they’re going to the best place possible.”

The Teddy Bear Transport team is made of 16 neonatal/pediatric nurses, 15 respiratory therapists, 20 paramedics, 10 communications specialists, and two outreach educators. When a call comes in, the team determines which aircraft or vehicle to use based on the distance to the call, and each call receives a nurse, respiratory therapist and a paramedic.

“It’s the best job in the world. When I come in for my shift, I don’t know what I’m walking into or where I’m going that day,” said R.N. Stephanie Schmit. “We get to hop into one of our aircraft or ambulance and provide care to our patients. It is an exciting job. Every day is different, every call is different.”

Providing emergency medical care is a crucial job in itself – add on top of that the ability to provide care inside a small space on a moving aircraft. Schmit says the team works so closely together that when they’re treating a patient, they’re intuitive and can read what their colleague is going to do next.

“When we go up on the helicopter, it’s a nurse, paramedic and respiratory therapist, it’s just three of us,” Schmit said. “It’s us three and three backpacks, essentially, that we have to provide all the care. It’s a very small confined area. Sometimes we’re diving over each other to grab items and to give medicine. We work very well as a team, it’s a well-oiled machine.”

The transport team takes care of critical patients and has also been involved in transporting patients during emergency evacuations, such as Hurricane Harvey. The team members have been referred to as “the angels in blue jumpsuits.”

“Occasionally, we will get cards from families thanking us for taking care of their child, that is when we realize how meaningful our job is.  For these families and patients, this is their worst day, but for us, it’s our every day, so we have to be reminded how meaningful our job really is,” Putman said. “We engrained in our team so much to just be nice and give the care that you would want to be given to your own child.”

“The team, they do it so well that they don’t even realize that they’re doing it until they get these cards. This is our everyday life,” Putman said. “There’s no better job than on the Teddy Bear Transport team.”

Kaitlyn Smith was born to Bill and Jennifer Smith at Harris Southwest on Jan.18, 1996. After months of a perfectly healthy pregnancy, the couple learned Kaitlyn was arriving early. When she was born, she was transported to Cook Children’s by Teddy Bear Transport, and her parents learned the severity of their daughter’s condition.

“When we got to see her, the doctors let us know her condition was critical. They didn’t offer us much hope, but as a first-time mom, I knew we had to try something. I was pleased they were willing to do what they could,” Jennifer recalls.

The first indication something was wrong with Kaitlyn was when the doctors noticed she was unable to pull in air through her nose, they later diagnosed her with CHARGE Syndrome. After more tests, the doctors informed the couple Kaitlyn had three holes in her heart and they would need to perform heart surgery.

Kaitlyn was alive 19 days before she ultimately succumbed to complications with her heart surgery. Throughout her time in the hospital, the family met a young nurse named Candace Alphin. Alphin cared for Kaitlyn during her shifts, and when she died, Alphin was there for the family.

“Kaitlyn needed multiple surgeries. Unfortunately, she was one that we couldn't fix, and I’m a fixer, “Alphin said. That was hard for me. As a newer nurse, it was hard to realize we couldn't make everybody what we wanted them to be.”

The Smith family understood their daughter couldn’t be “fixed” and their faith got them through the trying moments. They believed if the doctors could learn anything from their daughter, then everything they endured was worth it.

“Candace helped prepare us for what the doctors were going to want to do. She explained everything thoroughly and made sure we understood what was taking place as Kaitlyn’s conditions worsened,” Jennifer said.

Just over a year after losing their daughter, the Smith family welcomed another baby girl. Honoring the nurse who took such good care of Kaitlyn, they named her Candace.

The couple said agreeing to name their daughter after Alphin didn’t come with any hesitation.

“I asked Jennifer what she thought about naming her after Candace because of the connection we felt with her, and she agreed that it would be a nice way to tie everything together,” Bill said.

As their daughter grew up, Bill and Jennifer consistently reminded Candace where her name came from and shared stories about their stay at Cook Children’s. Candace studied nursing, got married, and became Candace Lapointe. In a full-circle moment, after graduating from nursing school, Lapointe began her career at Cook Children’s. Lapointe was hopeful she would be able to connect with Alphin and share the news.

Once accepting the job, Lapointe learned Alphin still worked at Cook Children’s and was excited to share the news with her in person.

Twenty-three years later, Alphin describes the reunion as a moment that felt 'just right.’ Alphin says the moment was amazing, and she was speechless.

“I came around the corner, and I didn't have any expectations of what she would look like. As soon as I saw her, I just recognized her. She looks so much like her parents and what I imagined Kaitlyn would look like,” Alphin explained.

Lapointe says although she never had a chance to meet her sister, Kaitlyn’s memory and Alphin’s support for Kaitlyn and her family during a difficult time is what pushed her to go to nursing school. As for coming to work at Cook Children’s, she said there was never a second thought about where she’d want to begin her career.

“I’ve always wanted to work for Cook Children’s. My parents remind me how much all the nurses and doctors supported them, and I want to do the same for other families,” Lapointe shared.

Alphin believes Lapointe will touch lives through her career. Lapointe is currently a licensed vocational nurse (LVN) and hopes to become a registered nurse and work in the NICU that took exceptional care of her family.

“I feel like I'm the one that's been 100% blessed by being a part of their lives, not the other way around, which is the way I'm certain that they'll try to tell it,” Alphin said. “It was amazing to walk up to a woman and know she has her name because of something I did.”

Everyone is optimistic that post COVID-19, they can meet in person to reminisce on the last 25 years and hope this story continues for many years to come.

“I want them to realize how special they are and although they may think I transformed their life, they changed my whole career,” Alphin explained. “I would have never been able to share the things that I've shared with other families, nor would I have been able to be as strong as I am."

“We love Candace Alphin very much. She has made an amazing impact and she will forever be with our family,” Jennifer said.

Disclaimer:

This story occurred before Cook Children’s enacted its boundaries policy. The policy prohibits staff from having ongoing relationships with families and patients past direct care.

The Magnet^® Recognition Program is the gold standard in nursing excellence and validation of high quality patient outcomes. Research shows Magnet^® hospitals have increased patient satisfaction, decreased length of hospitalizations, and lower mortality rates, as well as above average nurse-satisfaction and retention rates.

“This recognition is another example of the incredible culture of excellence at Cook Children’s,” said Nancy Cychol, chief of hospital services and affiliate ventures at Cook Children’s Medical Center. “Our nurses go above and beyond every day to elevate the experience for our patients, families, and staff.”

Only 8% of the approximately 6,000 hospitals in the U.S. are Magnet^® designated. Cook Children’s is the first freestanding children’s hospital in North Texas to receive its fourth consecutive designation. Fewer than 1% of hospitals receive Magnet^® recognition four times in a row, ranking Cook Children’s among an elite group of high performing medical centers. Hospitals must re-apply for the designation every four years. Cook Children’s has been recognized consistently since 2006.

Consideration for Magnet^®  designation is a rigorous process, which included providing more than 100 examples of nursing excellence at Cook Children’s, participation from nursing staff across nearly 70 departments, as well as an onsite visit, which was virtual due to COVID-19. Evaluators were particularly impressed with Cook Children’s highly competitive nurse residency program, outpatient clinics, and Heart Center.

“It’s important to realize that every single example of nursing excellence provided to the ANCC was above the call of duty. These were programs, processes, and curriculum developed by nurses to move the needle on quality and safety outcomes,” said Cheryl Petersen, chief nursing officer at Cook Children’s. “This is what sets Magnet^® hospitals apart from other hospitals. It is acknowledgment of forward-thinking innovation, research, and high-level training. We are so proud of what our nurses continue to achieve.”

Rebecca Benson had a feeling the weather predictions would be wrong when she woke up Thursday, Feb. 11. As she suspected, no winter storm arrived overnight to cancel school for her two children. Like any other day, she quietly put on her scrubs while her family slept and left her North Fort Worth home in the dark. A diligent nurse at Cook Children’s Medical Center for six years, Rebecca didn’t want to be late for her 7 a.m. shift.

As she traveled down Interstate 35’s expressway, everything seemed normal – until it wasn’t.

“The roads were completely dry. There was not even a mist on my windshield, absolutely nothing,” said Rebecca. “All the bridges I went over were perfectly fine until I came across the big Trinity River bridge.”

Driving down the highway for nearly 20 minutes, she had no reason to suspect what lay ahead – black ice, and a crumpled mess of metal and people. Approaching a curve at the top of a hill, Rebecca’s car began to swerve. As she confidently corrected the wheel, she noticed shining taillights getting closer. It was a pileup that would ultimately involve more than 130 vehicles, killing six people.

“I look in front of me and see all of the carnage from the accident. There's absolutely nothing I can do,” she said. “It’s the expressway. There's barriers on both sides of you. You can’t go to a shoulder. You can't do anything.”

Knowing she was about to crash, she aimed her red SUV in between two semi-trucks.

“I put my foot on the brake, said a prayer, and I literally thought to myself, ‘I could very possibly die in two seconds,” she said.

Rebecca tried to relax her body to avoid broken bones and readied herself for impact. She hit the trucks so hard, her ponytail holder came out of her hair.

“I got through that and thought, ‘Okay, I'm alive. I'm not severely injured. And then I looked in my rearview mirror and see all of these lights coming right at me,” she said.

Rebecca says that’s when she realized she wasn’t out of the woods. The chances of her being injured or worse by the oncoming traffic were high. But thanks to her quick thinking before the crash, she had positioned her vehicle in what she calls “God’s triangle,” because the trucks stuck out past her SUV, protecting her.

“Everything that hit behind me, the trucks took the impact from that. Every time another semi would hit, you would hear and feel the car move. It was so unbelievably terrifying,” she said. “I've seen it on videos, but to actually be there, waiting to see if something even worse is going to happen was awful.”

Rebecca stayed in her SUV until she stopped hearing crashes. All four doors were blocked by the trucks, so she waited until someone opened the back hatch of her vehicle. She crawled out and surveyed the situation in shock.

“I'm like, ‘Okay, I'm a nurse. I got this. Who can I help? What can I do?’” Rebecca explained. “But Fort Worth Fire Department was working a wreck on the non-express side of 35 (when the pileup began) so they were already there. There was a car behind me that they were working on with the Jaws of Life to try to help somebody. Everyone from Fort Worth Fire was amazing.”

After the crash, Rebecca called her husband who was ready to come get her. She also had a text message from her coworker, Ed, warning her not to take I-35 because traffic was backed up. Knowing Ed was stuck nearby, she decided to find him and hitch a ride to work.

“I was like, ‘All right, I'm gonna hop the barrier and I'm walking your way because there's nothing I can do. But I can at least get in your nice warm car and be safe that way,” she said. “I walked up I-35 in the ice. It was the weirdest thing to be walking on a highway.”

When she found Ed and his girlfriend, Kim, she told them to take her to work. Rebecca explained that she could have gone to the reunification center set up by first responders and waited for her husband, but she knew that drive would likely take hours due to the shutdown. She also felt the need to do something other than think about what she had just survived.

“Being able to be at work and helping instead of reliving that,” she explained. “I was like, ‘I need to get to work and just see where I can help.’”

Rebecca acknowledges this is something she will be processing for a very long time. She allowed her husband to come get her a few hours later and take her to a hospital. Thankfully, she only suffered bruises. But she’s already dealing with survivor’s guilt, wondering why she was able to walk away when so many others couldn’t.

“My heart breaks for all the people who lost loved ones, and who have loved ones in serious condition,” she said. “It's horrible, awful, terrifying.”

Rebecca remembers seeing many people in scrubs as she was walking along the interstate and calls the situation a ‘perfect storm’ for health care workers, all trying to get to work at the same time. Asked if she felt like a hero, she adamantly says ‘no.’

“I feel like I'm absolutely blessed and had guardian angels surrounding me,” she said. “I did what any other nurse I know would do. I didn't save anybody. I didn't do anything extraordinary. I just did what I'm supposed to do.”

She says the experience also gives her hope. From the first responders to good Samaritans, she says she saw the good in people. Even when she was safely waiting with Ed and Kim, she remembers a man walking car to car with a box of granola bars for anyone who may have skipped breakfast and needed something to eat.

“It gave me a lot more faith in humanity.”

“These are a couple of toys for our PICU and TCU families,” she says, donning a plaid scarf and a Cook Children’s mask.

Coffee mug in hand, she speed walks to the door – partly to get out of the cold and partly to check in with the charge nurse as soon as possible before the COVID-19 Command Center call in 30 minutes. By her side is Lori Parrott, a pediatric intensive care unit (PICU) nurse manager, who’s helping carry in Christmas presents for patients.

“It sounds like we may have gotten two more overnight,” Melodie tells her as they briskly cross the sky bridge linking the garage and medical center.

As the director of the PICU and the Transitional Care Unit (TCU) at Cook Children’s Medical Center, Melodie wears a lot of hats. She’s a decision maker. A trusted leader. A master juggler. And she oversees a special wing dedicated to critically-ill COVID-19 patients known as 2North.

She quickly sets the bags down in her small, windowless office and heads to the nurses’ station without pause. Sitting next to a small Christmas tree, the charge nurse fills Melodie in on what happened overnight. A med alert, or medical emergency on the 3P, the stepdown COVID-19 unit, and a DKA, otherwise known as diabetic ketoacidosis. But the big news is the latest patient admitted to 2North. It’s a teenager transported in from another hospital. This patient makes eight on the unit, which has a total of 10 beds. This admission means her team will soon have to find more space to house the patients that are increasingly filling up the COVID-19 unit.

Back in her office, Melodie awaits her turn to speak on the Command Center call, a tri-weekly meeting for leaders entrenched in COVID-19 planning and processes. While sipping coffee, she listens as the director of infectious diseases rattles off the latest number of children who’ve tested positive for the virus. Today, it’s 112 in 24 hours, with 25 currently in the hospital.

Soon, it’s Melodie’s turn to share bad news.

“We may need to think about moving kids over to ‘A’ depending on what the continued census is, and especially if we get down to one bed,” she says as clearly and concisely as possible. “These kids continue to be quite ill and I don’t think any will go out today.”

Moving patients to ‘A’ means opening up a new COVID-19 ICU wing. The hospital is being stretched, but you wouldn’t know it by the positive tone of the call. People are optimistic; there’s hope on the way. They’re waiting on notification from Pfizer that the hospital’s allotment of the COVID-19 vaccine has shipped, which could happen at any moment.

We’re with Melodie this Wednesday morning, the week before Christmas, because she’s offered to show us something we have not seen before. She’s volunteered to take us inside 2North.

Inside the COVID-19 ICU

After the call, we follow Melodie down the hallway, her heeled-boots clicking on the confetti-laden floors. Big, purple double doors are ahead of us with 8-by-11, paper signs. They read, “Doors Must Remain Closed,” and “Isolation Garb for COVID (+) rooms,” with a long list of recommended attire: N95 or PAPR, surgical mask, gown, goggles or face shield, gloves, hair covering, and booties. Immediately upon entering, we see all of this gear in action. To the right, there’s a doctor towering over two nurses. All three are concealed inside in personal protective equipment (PPE) – yellow gowns, white masks and blue headcovers. The physician’s goggles resemble something you’d see on the ski slopes, but he’s not on vacation. He’s just left the room of a child who’s suffering a heart arrhythmia due to the virus.

It feels like we’ve just stepped inside a beehive or an ant bed. Every worker has a job and they’re busy doing it. The energy is fast-paced, but controlled. We watch as a respiratory therapist just a few feet in front of us straps on a PAPR, a small backpack that pumps air through a hose into a sealed helmet. Her speed and skill reveal that she’s done this many times.

To the right, a gloved nurse gives us a thumbs up through a window in a patient’s room. She’s talking to her colleague, who’s sitting at a computer on the other side of the wall. The two are communicating through a mini walkie-talkie type device called a ‘Vocera’ that’s clipped onto their scrubs.

“Can I bring you anything,” said the one sitting near us.

The nurse inside the room can’t leave. She’s halfway through a 12-hour shift, meticulously monitoring the many machines keeping her patient, a 12-year-old girl, alive. This is not a job for the weary. She’s an ECMO specialist, meaning she is precisely trained to take care of children who need extracorporeal membrane oxygenation (ECMO). This treatment is a last resort in which blood is pumped to a heart-lung machine that removes carbon dioxide and sends oxygen-filled blood back into the body.

When a child is on ECMO, two of these specialized nurses or respiratory therapists remain at the bedside at all times. Breaks for food and the restroom are limited. Layers of PPE keep them safe from the virus, but not comfortable. They wear two masks, a surgical mask on top of an N95, plus a face shield, gown, gloves and headcover. If they were soldiers, they’d be ready for war. Their enemy, though, can’t been seen – only the ravages it’s left on their young patient.

Melodie has asked if the girl’s mother would be willing to speak to us. She’s just woken up from the small couch/bed in the room and agrees to step into the hallway. Obviously exhausted, she tells us her name is Florence and that her daughter was diagnosed with COVID 11 days prior.

“She was having a mild temperature, so I brought her to the emergency room just so they could check her out, and we ended up here,” she said in a low, hushed tone. A steady beeping flows in the background.

“That visit was the best decision I made,” she said.

Due to the virus, Florence is the only person allowed to be in the hospital with her daughter. And she can’t leave the room, unless she is leaving the property. All meals are delivered. Anything she needs will be brought to the room for her.

We asked about her time at Cook Children’s, and how things have been.

“I love this place, and I love the staff,” she said.

Florence breaks down. She says everyone she has encountered at the hospital has treated her as if they were the only family there.

“That matters a lot,” she said with tears soaking into her mask.

Ready to return to her room, she shares one last thought: “The ECMO machine is a lifesaver.”

As she walks away, Melodie asks ECMO Manager Jill Pittman to suit up and join the two nurses inside the girl’s room. Shanna Senay and Sara Morgan are the ECMO specialists on duty today. They show us the machine that’s taken the place of the child’s lungs and heart. It’s a bulky contraption with multiple screens, tanks, and tubes, which are red with blood pumping through them.

“ECMO is allowing her lungs to rest and heal from the pneumonia, while we oxygenate her blood and circulate it throughout her body,” Shanna says.

She’s the nurse who gave us the thumbs up from behind the window.

“ECMO is the highest form of medical care that we offer at Cook Children’s, and it requires a lot of training,” said Jill, who’s been a nurse at the hospital for 23 years and now leads the ECMO program. “To be able to facilitate that and have an active role is very meaningful to me.”

ECMO patients are often on the machine for weeks, not just a few days. Because of that, ECMO specialists have to have endurance and the mental fortitude to keep going, even when there is no end in sight.

We’re curious and ask ‘Why do you do this?’

“There’s something special about being able to take care of these kids when they’re so sick and their parents can no longer give them the care they need. Then, it’s up to us,” Sara said with clean air being pumped inside her PAPR helmet. “It’s the last chance these kids have, so we fight every day, every night until they get to the point where they can get better on their own.”

Shanna nods in agreement.

“These kids are warriors. They’re why we push through and why we come out of here sweating bullets and having held our bladders for hours,” she says. “If it were my kid, I would want somebody doing the same thing.”

Back in the hallway, another group of 2North staff members gather to talk to us. One is a young nurse named MyKayla. She has bandages across the ridge of her nose and both ears to protect herself from her N95, which cuts into her skin and leaves sores. Five bandages total, but she’s not complaining. She says she loves taking care of children. It’s her calling.

A respiratory therapist named Joanna is with her, along with another nurse named Megan. They both echo MyKayla, saying they love what they do. We ask if they’ve ever felt scared. There’s a pause.

“Yes, I’ll say it. Especially with it affecting the Hispanic population, it worries me for my family,” says Joanna, who is Hispanic. “But, if God forbid, any of my family members get it and had to be in the hospital, I feel completely comfortable with our doctors, nurses, and respiratory therapists taking care of them.”

Megan jumps in.

“I’m not scared, but I have a healthy respect for it,” she says point blank.

Megan, tall and blonde, moved to Fort Worth a couple of years ago when her husband was sent to work at the Naval Air Station Joint Reserve Base. She was accepted into the competitive nurse residency program at Cook Children’s, and after six months was selected to work full-time in the PICU. She had just a few months under her belt before the pandemic hit. Nearly 10 months on 2North, she now seems like a seasoned nurse.

“I came into this profession knowing anything is game,” she says. “Since COVID, our teamwork as a unit has exponentially increased. It’s been stressful, it’s been frustrating, things are constantly changing, but we keep plugging through, trying to keep our spirits up, and the kids’ spirits up too.”

Off to the side, Jennifer Hayes has just exited a patient’s room. She’s a chaplain on the floor and is accustomed to the tougher moments of an ICU setting.

“The PICU is a hard and heavy place to work, and then you add COVID on top of that, it’s tough,” Jennifer tells us, her appearance failing to match her words.

She’s wearing a bright red shirt with a snowman on it. Her hair is short and brown, pulled up into two spunky knots. She explains her role, how she helps patients and families deal with difficult situations both emotionally and spiritually. She provides the same support to the PICU staff.

“I’m trying to bring joy and fun into the unit,” she says while showing off her fanny pack, creatively decorated to look like a taco for a contest she spearheaded.

She also tells us about the ‘COVID Café,’ a space she established on the unit for worn-out frontline staff to retreat to during their shift. They can watch TV, enjoy the snacks or one of the many word searches, games, or funny memes she’s left at the half-dozen socially distanced tables.

Jennifer is the caretaker of the caretakers, and one of the many moms on the unit. She, like everyone else on this floor, has had to change the way things are done at home. She explains how her 2 year old always wants to hug her as soon as she walks in the door, but can’t for fear that some microscopic particle of COVID-19 has made the trip home with her.

“It has been a big change and has created a delicate balance where we are trying to keep normalcy for our kids, but also we have to be mindful keeping them safe,” she says.

Ashley Miller, the charge nurse we saw filling Melodie in early this morning, agrees. She is also a mom and shares how her 14-year-old son watches the news and worries. She oversees the entire 43-bed PICU and is in charge of admitting each patient. She says the now is by far the worst they’ve seen of the pandemic.

“It’s a reality that kids can get COVID and they can become very, very sick,” she says. “It’s definitely a change from March, we’re seeing many more now.”

While we’re talking, Melodie reminds us about an 11:30 a.m. meeting we’re due to attend. It’s with PICU leaders, and they have a lot to discuss.

Leading During a Pandemic

We make our way down to the basement of the hospital where five women have gathered in a classroom. More are on a conference line. Their top concern today is overflow for COVID-19 patients.

“It’s hard to put a target on when we should open a new wing, because we don’t want to turn around and close it if our census lowers,” Melodie tells the group, which is spaced out around the large room. “But once we get to nine patients, that’s it, and that can change in five minutes.”

Until recently, 2North only had two to three patients at one time. Now, it’s pushing capacity. Finding more space and beds is not an issue. The problem is staffing. With a new COVID-19 ICU unit, more staff will be pulled in to take care of the children in the beds. That’s worrisome because burnout is already top of mind for these leaders. They will do anything to prevent losing essential caretakers. That includes Linda Thompson, M.D., medical director of the PICU, who’s sitting in the corner of the room. She is so concerned about burnout, she offers up her vacation home on the Texas coast for fatigued staff to escape to with their families. Everyone here is willing to do whatever they can to prevent from losing people in the pandemic.

“Ding, ding, ding – Ashley Miller.”

This is the sound of a call coming into a Vocera. Ashley, the charge nurse, is alerting the leaders that another COVID-19 patient is being admitted as they speak. Their discussion about overflow may take shape sooner than expected. They hurry to get through their agenda, knowing there is work to be done on 2North.

After the meeting, we part ways with Melodie. She’s off to do what she does best, leading her team during a challenging situation. We’re gathering our cameras and equipment to capture another area we’ve never seen, the step-down COVID-19 unit known as 3Pavilion, or 3P. Until today, 2North and 3P had been restricted to ‘necessary’ personnel only. Somehow, we got lucky, and are being allowed inside both.

Inside 3P – the COVID-19 Step-Down Unit

We take the nearest elevator to the third floor. As soon as we step off, Valerie Badgett, the day nurse manager, is waiting for us. She’s worked on this unit for 17 years and recalls the day this past March when administrators gathered everyone into a break room and told them they were about to be taking care of COVID-19 patients.

“This was a specialty med surge unit prior to COVID. We treated patients with renal disease, from acute kidney failure to children who received kidney transplants, and GI patients,” she explained. “When they told us we were going to become a COVID unit, people were understandably nervous.”

The administrators explained that their floor has a unique airflow system, which allows air to vent directly outside. This prevents airborne viruses from circulating through the ventilation system.

Valerie tells us more about that day in March, and how they had to quickly move their patients to other floors. They thought they had days to prepare for their first suspected COVID-19 patients. In reality, they had just hours before seven children under investigation for COVID-19 were admitted to their floor.

“There were a lot of questions at first because we didn’t know enough about it,” Valerie said. “But Dr. Whitworth came over the very next day and eased a lot of people’s concerns. She has always been there to answer our questions.”

Mary Suzanne Whitworth, M.D. is the medical director of Infectious Diseases at Cook Children’s. Valerie credits her composed leadership for helping the staff on 3P not only accept the challenge ahead of them but take it on as a mission they were called to serve.

Unlike 2North, the atmosphere on 3P is calm. It’s quiet and much larger than the ICU. Patient room doors stretch down two long hallways lined with purple and blue carpet. The only thing that visually sets this floor apart from other non-critical areas of the hospital is the donning and doffing of PPE happening all around us. Doctors and nurses are suiting up in PAPRs, gowns, goggles, and gloves before entering rooms. Knowing this team didn’t necessarily sign up to take care of COVID-19 patients gives us a whole new respect for them.

“It has brought a lot of new diagnoses that we didn’t take care of before, chemo patients, newly diagnosed diabetes, a lot of patients that we’ve gotten have come in the emergency department because they’re sick from something else, and then coincidentally they test positive for COVID,” Valerie said. “Many of our nurses have become certified in chemotherapy so they can take care of the patients we’re now seeing.”

Hearing how this unit has stayed together the past 10 months, even when they had opportunities to abandon ship to work in other areas, is inspiring. They’ve overcome fear, learned how to care for an array of injuries and illnesses, and built an unbreakable bond. They’ve proven resilient, and their strength is needed now more than ever.

“We have 20 beds on this floor, and today we have 17 patients,” says Ashley Kovacev, the night nurse manager who’s volunteered to give us a tour.

She walks us down the hallway, pointing out the negative pressure rooms they never had to use for isolation purposes until this year. We round a corner and an alarm is dinging. A light overhead flashes. Ashely peeks into the room.

“Are you ok?” she asks.

Inside, a mother needs help getting her child to the restroom. Ashley calls for a nurse.

Families on 3P rely on the staff for everything, including food and water. Like 2North, only one parent at a time is allowed per patient and they can’t leave the room unless they are leaving the hospital. Because of COVID-19, the floor’s family lounge and playroom are closed. Patients and parents are stuck in their rooms, but everyone tries to make the best of it.

One small glimmer of hope is the child life specialists and music therapists who don and doff PPE to deliver activities to the children’s rooms. We spot one, a young woman with long blonde hair, sitting alone in the closed playroom. She’s teaching a patient how to play guitar via Zoom, just one of the many creative ways the child life team is engaging isolated patients.

To the left, down a short hallway, a woman in a blue scrub top and black pants is pushing a large cart.

“That’s Rebecca. She’s been absolutely phenomenal since day one,” Ashley says. “We tease her because she literally wipes down the walls non-stop.”

Rebecca is an environmental services worker. She looks uncomfortable as Ashley gushes about how she has kept the team safe throughout the pandemic.

“Not a single person here has contracted COVID from our unit,” says Ashley, crediting Rebecca for their protection.

Reluctant to accept the praise, Rebecca says simply through her mask, “We have to take care of each other.”

As we near the end of the tour, a food services employee in a mask and goggles delivers a plastic bag full of Styrofoam containers to the nurses’ station. It’s just one of the many trips he will make to 3P today, delivering three meals to each of the 17 families on the unit. He, like everyone else we’ve met, smiles as he drops off the food.

It’s no small feat for any of these people – the changes they’ve adapted to. The anxiety of the unknown. The courage they’ve displayed. After spending eight hours behind-the-scenes of Cook Children’s COVID-19 units, we can attest to the following statement:

“Our staff truly honor our ‘Promise’ every single day,” Ashley says holding back tears. “It makes me emotional. These people are so resilient. They care for these kids like they’re their own. It’s truly amazing.”

In the following video, our team answers the questions they hear most frequently, including how COVID-19 has impacted the program.

Learn more on our website.

Their journeys differ in many ways. Emily is a two-time cancer survivor who says she essentially ‘grew up’ at Cook Children’s, while Jason was diagnosed as a young adult. But both say they were so inspired by their experiences at Cook Children’s, they decided to return to care for patients and families who resemble their own stories.

For Jason, becoming a nurse was not even on his radar. At 20 years old, he was studying to become an opera singer at Oklahoma City University. At first, he thought the shoulder pain he was experiencing was the result of a boxing class he was in. Then the pain moved to his hips. After several visits to different doctors, Jason finally had bloodwork done.

“They discovered that my white blood cell count was crazy high,” he said. “They’re supposed to be about 6,000 and I think mine was 68,000 at the time of diagnosis.”

He was advised to go to Cook Children’s to see Karen Albritton, M.D., who specializes in teenage and young adult cancer. Luckily, Jason was already familiar with Cook Children’s since he grew up in Fort Worth.

“Finding out that the best place you can go is in your hometown was just serendipitous,” he said.

It was at Cook Children’s that Jason received the diagnosis of biphenotypic leukemia, a mixture of both acute myeloid leukemia (AML) and acute lymphoblastic leukemia (ALL). He spent a total of three months receiving chemotherapy and radiation for his cancer. During that time, genetic testing revealed he was highly likely to relapse if he didn’t receive a bone marrow transplant. In another twist of fate, he learned his only brother was a perfect match. Thanks to his sibling’s willingness to become a donor, Jason received the bone marrow transplant that would ultimately make him cancer-free on May 8, 2012.

“I ended up having my transplant on my 21^st birthday,” said Jason. “It's something I always joke about because whatever day you get your transplant is supposed to be celebrated as your second birthday, but I still only get one.”

To make his 21^st birthday even sweeter, Dr. Albritton arranged for three singers from the Fort Worth Opera to come visit him in the hospital.

“She really went above and beyond, and really, it was a very, very special day,” he said.

With the intense treatments Jason had to endure to fight the cancer, he wasn’t sure he’d ever be able to sing again. It had been a dream of his to become a professional performer since early childhood, but he feared his vocal chords had been permanently affected by the medication. But after beating cancer, Jason went on to finish his degree and even received a master’s degree in opera at the San Francisco Conservatory of Music.

“While I was doing all of that, it just felt like something was missing. I had thought about becoming a nurse when I was in the hospital,” Jason explained. “So I went back to my other love and honestly, I've never been happier than I am right now as a nurse. And especially at Cook Children’s, being able to work at the hospital with some of the people who treated me, and being there for these kids the way the nurses were there for me. I've gone home crying happy tears multiple days because I just feel so lucky.”

He says he loved his doctors, but the nurses held a special place in his heart.

“The nurses are the ones who are with the patients most of the time, and it was the nurses who really took care of me when I was at my sickest,” said Jason, his voice cracking as he spoke. “When I was in the most pain, when I couldn't stand or sit, they made my treatments bearable. I actually got to tell one of them that she specifically was the reason I wanted to become a nurse, because of all the ways that she helped me when I was a patient.”

Much like Jason, Emily says the nurses left a big impact on her, though she was much younger when she was diagnosed.

“I spent the majority of my childhood fighting cancer at Cook Children's,” said Emily. “In November of 2001, when I was almost 4 years old, I was diagnosed with Wilms' tumor. I had my kidney removed with my tumor. That was the size of a youth football.”

For Emily, the treatments lasted many years. She relapsed twice and had to have additional surgeries on her lungs and diaphragm, all followed by chemotherapy and radiation.

“Cook Children's quickly became my second home and somewhere that I felt safe,” she said. “I thought this was normal. Cook Children's made it feel fun, like something that I didn't have to do, but it was just part of life.”

She has especially fond memories of the Hematology/Oncology infusion center where she would receive treatments as an outpatient.

“The clinic was like a sanctuary for me. It was somewhere that I felt safe and where there was other kids like me who were bald and had ports and IV poles. That's where I would make most of my friends,” said Emily. “The clinic nurses always were a blast, playing music and giving out prizes. And Child Life made sure that even though we were there for hours, that it was always fun.”

In 2004, Emily received an autologous stem cell transplant and was deemed cancer free. She was on the mend until middle school when she developed a second cancer in her thyroid, likely due to heavy treatments from her first cancer. She had her thyroid removed and she was once again cancer free. She says even then, she knew she wanted to take care of children. When Emily went to college, she considered going to medical school to become a doctor, but quickly realized nursing was her calling.

“I love interacting with people. I love having relationships with people. I love being very hands on,” she said. “I felt like a doctor does all of those things wonderfully, but I felt like as a nurse, I could do all of those things more prevalently.”

She applied to Cook Children’s nurse residency program, but knew the competition would be strong. Out around 600 applicants, only about 5% would be accepted into the 12-month program.

“I knew that working at Cook Children's was a privilege and an honor, and I just had to tell myself that it may not happen right away, but I'll get there someday,” Emily said. “When I got the phone call from the manager of the nurse residency program, I think I cried as soon as she told me who she was. I didn't know if it was going to be a yes or no, but I still cried. As soon as she gave me the offer, I accepted it right on the spot. I think I said yes a hundred times. My mom was in the car with me and we both bawled after I hung up because it just came full circle.”

Both Emily and Jason say they want to work on the Hematology/Oncology floor where they were patients, but also understand the need to keep an open mind since placements for nurses at Cook Children’s are never guaranteed. After rotating through several departments for six months, Emily recently received her permanent placement. She’s officially a nurse in Hematology/Oncology.

“That kind of sealed the deal and it all made sense to me. The plan that God has for my life… all that I went through wasn't just something to go through. It had meaning,” Emily explained. “I always say that I wouldn't go back and change it, because it's allowed me so many opportunities to help other people and, now, children like me.”

Jason, who just began the program in July, is currently rotating through the Hematology/Oncology (H/O) floor. He hopes at the end of his six month rotation, he’ll be joining Emily.

“It's a very special population,” said Jason. “And the nurses just all care so much. I mean the whole staff, everyone cares so much about these kids and just work so hard for them and work so well together because of that common passion. And it's just really special to be here.”

“She was very athletic. When the pain began in her knee, we chalked it up to a sports injury,” said Abby Jackson, Danakah’s grandmother.

It was 2016 and Danakah was living with her grandparents in Covington, Texas. She was in the ninth grade and, like most teens, couldn’t wait to get her driver’s license. She was a normal kid, but within a matter of months her life would be turned upside down.

“In February, she started complaining about her back hurting. I took her to the doctor and he put her on some pain pills,” said Abby. “We figured she twisted it or pulled a muscle.”

Then Danakah began losing weight. She lost 15 pounds in less than 10 days. It also became difficult for her to breathe. Her doctor knew something was going on and ordered a round of scans. An MRI examined her lower back and a CT scan offered a glimpse into her chest. There it was in black and white – a tumor was clinging onto Danakah’s spine.

“We knew she had cancer. When the CT of her chest came back, they found eight different tumors in her lungs,” Abby explained.

The next day, Danakah and her family made the hour drive to Cook Children’s Medical Center in Fort Worth, Texas. She was admitted to the hospital immediately. Her new doctor, Karen Albritton, M.D., medical director of the Adolescent and Young Adult (AYA) program at the Hematology and Oncology Center, wasted no time getting to work.

“They did a biopsy of a bump on the top of her head. They also found more tumors. There was one under her left eye, one beside her right eye and one in her right leg,” said Abby.

The tumor in Danakah’s leg stretched all the way from her knee cap to her hip bone. Abby suspects it had been growing since her granddaughter first mentioned her knee pain back in the fall.

“It was so much easier to say where the cancer wasn’t. It wasn’t in her brain. It wasn’t in her heart or her colon or her intestines, but she was, head to toe, eat up with it,” said Abby.

Sadly, the cancer was in her blood stream and her bone marrow. Danakah was diagnosed with Ewing Sarcoma and started chemotherapy. She spent most of 2017 in the hospital. Even though she was missing her friends and school, Danakah was able to keep a positive attitude – something her nurses say helped draw them close to her.

“I was fairly new to my job when Danakah was diagnosed,” said Johanna Sargent, Hematology and Oncology nurse. “She was my first teenage girl to take care of and she was so full of life.”

Johanna and fellow nurse Aly Norris spent a lot of time with Danakah during the course of her treatment. They would play ping pong with her in the AYA lounge, walk laps with her around the unit or just spend time talking about her friends, family and hopes for the future.

“She was so funny. Sometimes, in the middle of the night, she would come over to the nurses’ station and show us magic tricks with a deck of cards,” remembers Aly. “She always had us laughing. Danakah was such a light.”

It wasn’t long before the chemo took its toll on Dankah’s hair. While most teenage girls couldn’t imagine going bald, Danakah took it in stride. According to her grandmother, Danakah insisted she wasn’t going to wake up each morning looking at the hair that had fallen out on her pillow. She decided to shave her head instead.

“I remember the day she walked out of her room and she was like ‘look!’” said Johanna. “I went over to her and started rubbing her head and telling her how much I loved it. I think she was a little apprehensive to do it but once it was done, she was so happy.”

Aly remembers when a Child Life specialist brought craft supplies to the floor. Danakah insisted that Aly participate, which she says is ‘just like Danakah.’

“I came to her room and she had two canvases and she told me we were each going to paint a word. She had decided the word would be ‘Daly’ because it was a combination of our names,” said Aly.

Despite her cancer, Danakah was always looking ahead. She was optimistic and sure she was going to get better and get her driver’s license. But by Christmas, her health had taken a turn for the worse.

“We almost had her lungs completely clear when three more tumors popped up,” said Abby.

One of the tumors caused bleeding near her lungs so a chest tube had to be inserted to remove the blood. Danakah was very sick and placed in the Pediatric Intensive Care Unit (PICU).

“She always had a happy attitude about everything but she was in pain,” said Abby.

Abby left her granddaughter around 11:30 p.m. on Jan. 24, 2018 to sleep in her room on the H/O floor. She told her to rest and she would be back soon. In a matter of hours, Abby was awoken by a phone call.

“They told me they had to put Danakah on a ventilator. We lost her at 1:30 that morning,” said Abby.

Danakah remained on the ventilator while the rest of her family traveled to Fort Worth. There were about 30 people in her room when she was removed from the breathing machine. She died on Friday, Jan. 26.

Among those who came to came to say their goodbyes was Ralph, her favorite therapy dog.

“She and Ralph had a special bond. I have a picture of them, both with their mouths open. They were so happy. That’s the photo we used in her memorial,” said Abby.

Johanna was also able to say her goodbyes. While in the PICU with Danakah’s family, someone handed her a bracelet asking it be returned to Aly.

Originally a gift from Aly, Danakah had been wearing the bracelet when she passed.

“On one of her last days on the H/O floor, Danakah asked to have something to remember me by. I said ‘let’s not talk like that’ and she ‘no, if we have something of each other’s then we can be together wherever we go,” explained Aly.

That night Aly went home and found two bracelets. One for her and one for Danakah.

“I keep her bracelet on my key chain as a reminder of her and why I’m a nurse,” said Aly.

Both Aly and Johanna say it’s often uncomfortable when people ask what they do for a living. Most people think being a nurse in a pediatric cancer unit is ‘depressing’ but neither see their careers that way.

“Honestly, our kids bring so much joy into our lives. It’s an honor to be able to be there for these families during such an intimate time,” said Aly. “Being a nurse is more than just medicine. It’s also about loving the kids and helping their families along the way.”

Johanna agrees, saying “I know people are afraid of what we do because they think it’s sad, but it’s not sad. You develop relationships with the patients and their families. Every single one of those kids leaves a mark on you.”

While it’s been nothing short of a difficult journey for Abby and her family, she says she’s thankful for all who cared for Danakah through her illness, especially the nurses.

“It takes someone special to work with children, and to work with children with cancer is even harder. They never let the situation get to them. Every nurse on the H/O floor deserves a raise. They are just wonderful people. We were blessed to have Danakah as long as we did.”

Little Charlotte Friessen, 7 months old, arrived at Cook Children’s only 30 minutes prior and was rushed to the Cardiac Intensive Care Unit. She needed an echocardiogram on her heart so she could get the help she needed. She needed to relax to get the proper readings before treatment could begin. But Charlotte was afraid and unhappy.

The years of training and experience weren’t enough for Tiffany Cox, Jen Jones and Mary Brennan. They needed to find something new to calm Charlotte down to get the ultrasound imaging of her heart.

What to do?

“Charlotte hated the little Doppler on her. The three nurses were doing everything they could to help her,” Anne Friessen, Charlotte’s mom, said. “They were talking to her and nothing worked. Then one of the nurses said, ‘Let’s sing nursery rhymes. The nurses had a blast.’”

The nursery rhymes and lullabies worked to perfection. Charlotte stopped crying. At least until the nurses stopped singing to think of new songs. Each time they stopped, Charlotte began to cry. Soon, everyone hit their stride and even Lane Lanier, M.D., a pediatrician on the Cardiac Specialty Care Unit team, joined in on harmonies.

Cox spent most of her career working with adults in the Intensive Care Unit and Cardiovascular ICU. She says one of the things she loves about Cook Children’s that she couldn’t do in the adult world of nursing “is be silly and play.”

“I have found such a deep joy working with these children and babies. The needs of kids, the things that make them feel better, are usually so simple,” Cox said. “If a little spontaneous singing and making silly faces with my colleagues makes a child in the CVICU smile and feel better, I will do it all day long. I happened to be across the hall that day with my own patient, and heard this poor darling across crying her eyes out during the echo, and I really just wanted to come ‘play’ with my colleagues. They were trying everything to make her feel better.”

But come on - how many nursery rhymes do you know off the top of your head? “We even ‘performed’ a sing-song version of the theme-song rap from The Fresh Prince of Bel Air,” Cox said. The three of us and the patient’s mom are about the same age and grew up watching that show. I mean, who gets to do THAT at work?! I love this place.”

The singing also helped ease Anne’s mind for a little while too. After all, so much had happened in such a short period of time.

“They sang so many nursery rhymes,” Anne said. “I felt like I stepped into an episode of Grey’s Anatomy. They sang for the entire echo. It was really neat.”

A month earlier, Charlotte was taken to see her pediatrician in Andrews, Texas. During her well-child visit, doctors found she had a heart murmur. About three weeks later, a specialist in Lubbock diagnosed Charlotte with a coarctation of the aorta. This means a narrowing of the aorta, requiring the heart to pump harder to allow blood through the narrow part of the aorta.

The family was immediately rushed to Cook Children’s and immediately the care began for Charlotte.

“The nurses met us as soon as we got there,” Anne said. “Everyone was so great. They helped us handle the situation a little more peacefully. Up until then, I had been so wide eyed about everything that happened. We talked to Dr. Lanier and all the nurses, I felt so confident in their work. They were so happy that we chose their hospital. Dr. Lanier thanked us so many times for letting him take care of our daughter. It made me feel good. Even through this horrible situation, it gave me peace.”

The next day, Vincent Tam, M.D., Cook Children's medical director of Cardiothoracic Surgery at Cook Children’s Heart Center, performed the surgery to fix the aorta. Anne said she and her husband, Albert, felt comforted during the surgery. Since the heart murmur was detected, the family's church had been praying for Charlotte and now they were praying for everyone taking care for the little girl.

“So many people, from all over the place, were praying for Charlotte,” Anne said. “But they were not only praying for us, but our doctors and the nurses too. Everything just went so smoothly. We were home in less than a week.”

Other than getting her high blood pressure under control, which was expected after her surgery, Charlotte is back to her normal self. She’s sitting up, playing and holding her own bottle.

And while Charlotte may not remember her time at Cook Children’s, it’s a moment the nurses will never forget.

“It was a special few minutes to be able to serve her and her family in that simple way,” Jones said. “I love that being a nurse sometimes means lots of time management and critical thinking, and sometimes means simply singing nursery rhymes over a scared baby girl.”

She had her first heart surgery at Cook Children’s when she was 11 months old. Her second came at age 15 and left her with vivid memories of the place where she would one day work.

“It was magical. I still remember the atrium, the paint on the ceiling and all of the colors. I also remember the staff. The nurses and doctors were excellent and so friendly.”

Heart surgery isn’t something one would expect to have fond memories of, but Flores says her experience as a Cook Children’s patient helped guide her life in a direction she may never have imagined.

“Growing up, I always wanted to be like my pediatric cardiologist, Dr. Lai. Now, here I am, working alongside him.”

Not only is she working with the physician who cared for her as a child, but also with her current cardiologist, Scott Pilgrim, MD, Medical Director of the Adult Congenital Heart Defect Program at Cook Children’s. Flores may be the only Cook Children’s employee able to say she’s a lifelong patient, still being treated today, but it’s a title she carries well. She knows what the patients are going through, and uses her experience to reassure them and their families.

“Sometimes I tear up because I’m thinking wow, ‘Is this what my mom was like or is this what I was like?’” said Flores. “I know surgery is scary. I’ve been through it, so I’m there, scared with them and praying with them. It can be hard but also very rewarding. “

When it comes to the future, Flores doesn’t seem too concerned about change. She says she wants to continue what she’s already doing, helping patients understand what to expect and helping parents understand what their child is going through. Most of all, she wants everyone to know that having a heart defect doesn’t need to hold a person back.

“I want patients to know that you can do anything you want to do. You can be a nurse, you can be a nurse practitioner, you can be a teacher or you can be the president!”

As for Flores, she’s perfectly happy being a nurse practitioner at Cook Children’s.

“I just want to continue working here forever. I fell in love with this place when I was a kid and am still in love with it now. “

This video about the #WorldsToughestJob went viral last week.  If you haven't watched it yet, please do, it is worth your time.

In thinking about this video, I thought of #AnotherToughJob that I thought I would write a job description for:

• Able to deal with people when they are at the end of their stress level, operating on very little sleep and have been waiting to see you or talk with you for hours.
• Able to deal with a boss who has a strong personality and convince them to complete tasks (i.e. filling out forms) when they would rather be doing something else (i.e. playing golf).
• Able to let said boss take all the credit when something goes right but force you to be the bad guy day after day.
• Able to deal with very messy situations - no exemption from poop, pee or puke exposure.
• Able to skip lunch or go without a potty break for hours should "special circumstances" arise (like most days).
• Able to deal with very sad situations and be a person of support even when you feel very sad yourself.

It's not all bad though...

Perks include:

• Dealing with the coolest people in the world-our patients and their parents.
• Watching a child grow to be a young adult (and eventually a parent themselves).
• Watching children who are sick return to health.
• Working with other great people who love children as much as you do.

So, say a special "Thank You" to all of our amazing nurses at Cook Children's.  

From our primary care offices to inpatient to specialty to home health, we have some of the best nurses in the country!

Leave comments for your favorite nurses and we'll pass the message along!