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                    <title><![CDATA[Checkup Newsroom]]></title>
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                    <pubDate>Tue, 04 May 2021 00:02:13 +0200</pubDate>
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                        <title>Cook Children&#039;s Leukemia Patient and Family Featured on The Ellen Show</title>
                        <link>https://www.checkupnewsroom.com/cook-childrens-leukemia-patient-and-family-featured-on-the-ellen-show/</link>
                        <guid>https://www.checkupnewsroom.com/cook-childrens-leukemia-patient-and-family-featured-on-the-ellen-show/</guid><pp:caseid>427965</pp:caseid><pp:subtitle>The Yielding Family visits with Ellen and receives a holiday blessing</pp:subtitle><description><![CDATA[<p><span><span><span>A <a href="https://www.checkupnewsroom.com/dad-dances-in-parking-lot-during-sons-cancer-treatments/">video</a> shared in September of Cook Children's patient&nbsp;Aiden Yielding, 13, and his dad, Chuck, dancing together from a distance during Aiden&rsquo;s chemo treatments quickly went viral and captured the hearts of millions around the world. </span></span></span></p><p><span><span><span>The latest set of eyes to see it?&nbsp;Ellen DeGeneres!&nbsp;The uber-famous comedian and talk show host interviewed the Yielding family about their journey with &ldquo;keulemia&rdquo; and surprised them with a special gift during the holiday season.</span></span></span></p><p><span><span><span>You can view their interview <a href="https://www.ellentube.com/video/ellen-meets-teen-leukemia-patient-and-family.html">here</a>.</span></span></span></p><p><img alt="" src="https://content.presspage.com/uploads/1065/1920_2ellenyieldingcover.png?x=1607542949943" style="margin: 5px; float: left; width: 500px; height: 283px;" /></p>]]></description><category><![CDATA[Cook Children&#039;s,Ellen,Hematology and Oncology,erase kid cancer,EKC,leukemia,pediatrics]]></category>
            <pubDate>Wed, 09 Dec 2020 13:35:56 -0600</pubDate>
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                        <title>Neuro-Oncology: A Look Behind One of the Most Difficult Jobs in Medicine</title>
                        <link>https://www.checkupnewsroom.com/a-look-behind-one-of-the-most-difficult-jobs-in-medicine/</link>
                        <guid>https://www.checkupnewsroom.com/a-look-behind-one-of-the-most-difficult-jobs-in-medicine/</guid><pp:caseid>232699</pp:caseid><pp:subtitle>How a pediatric neuro-oncologist deals with rare diseases, death and leading a top-level team</pp:subtitle><pp:boilerplate><![CDATA[<p>&nbsp;</p>

<p>&nbsp;</p>
]]></pp:boilerplate><description><![CDATA[<p><img alt="" src="http://www.cookchildrens.org/SiteCollectionImages/PhysicianBios/jMurray.jpg" style="width: 230px; height: 230px; margin: 5px; float: right; border-width: 1px; border-style: solid;" />The last thing <a href="http://www.cookchildrens.org/doctors/pages/bio.aspx?first=Jeffrey&last=Murray">Jeff Murray, M.D.</a>, wants to do is be interviewed for this story.</p>

<p>It&rsquo;s not about being rude or even shy, it&rsquo;s just he wants to make darn sure the love is spread around for the people that make up the <a href="http://www.cookchildrens.org/hematology-oncology/specialty-programs/Pages/Neuro-Oncology.aspx">Neuro-Oncology Program at Cook Children&rsquo;s.</a></p>

<p>&ldquo;That&rsquo;s probably the reason why I don&rsquo;t like to do these interviews! I don&rsquo;t want the attention on me,&rdquo; Dr. Murray said. &ldquo;The bottom line is the kids and the team that takes care of them. It&rsquo;s not me. There has to be a leader. I understand the hierarchy that has to be there. I accept that, but begrudgingly. I am proud of our Neuro-Oncology team. We are truly interchangeable in so many ways.&rdquo;</p>

<p>This is not just humble speak on Dr. Murray&rsquo;s part. A large part of the reason he became Medical Director of Neuro-Oncology is because one of his gifts is to build a solid, capable team that he empowers to do their work to the best of their ability.</p>

<p>When asked to talk about Dr. Murray, Mandy Mansell, the nurse practitioner for the Neuro-Oncology Program, says she&rsquo;s &ldquo;surprised he is letting you do a story on him.&rdquo; Mansell praises Dr. Murray as a teacher and says he&rsquo;s &ldquo;constantly looking to work his way out of a job by training his staff to function so well.&rdquo;</p>

<p>Dr. Murray is fond of saying if he gets hit by a bus, his team of Mansell, Neuro-Oncology Nurse Ashleigh Hines and Kelly Rand, the team&rsquo;s social worker, could step right in and do his job.</p>

<p>&ldquo;No other team of medical providers can say that they have educational support like we do,&rdquo; Mansell said. &ldquo;He does trust us implicitly and values our gut instinct/experiences, because he has taught us those things. He doesn&rsquo;t view himself as the leader, but more as just another member of the team. Our structure flows naturally out of this. Communication is fluid and immediate because we all contribute to the turning of the wheel in Neuro-Onc. He is constantly telling us that we don&rsquo;t need him or that we &lsquo;run the program.&rsquo; This is validating and continues to make us want to work hard.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_dr.murrayimage.jpg?x=1506450659058" style="width: 500px; height: 327px; border-width: 2px; border-style: solid; margin: 5px; float: left;" />Communication is key for Dr. Murray. Watch him throughout the day and you&rsquo;ll find him on his phone or on his computer. He&rsquo;s either e-mailing his co-workers on patient care or checking with colleagues across the nation on the best way to handle a case. He&rsquo;s also there for those same colleagues when they need help from him.</p>

<p>Dr. Murray jokes that he texts with the neurosurgeons throughout the day like they are teenagers, but adds they are in constant contact for the very serious reasons of making sure they are providing the best care possible for their patients.</p>

<p>&ldquo;Dr. Murray has been an invaluable addition to our Neurosciences team,&rdquo; said John Honeycutt, M.D., medical director of Neurosurgery at Cook Children&rsquo;s. &ldquo;He has spearheaded our Neuro-Oncology program.&nbsp;Jeff works very closely with us about each individual patient.&nbsp;We have continuous back-and-forth conversations, with emails and texts at the time of diagnosis and initial treatments (surgery) and after care. He readily assumes responsibility for each patient and immediately has his Neuro-Onc team start working on appointments, follow-up, treatment plans, etc. This easy communication with his colleagues allows seamless transition of care and provides personalized care for each patient and their family. Families love the thoroughness and honesty that Jeff brings.&rdquo;</p>

<p>Linda Margraf, M.D., a pathologist at Cook Children&rsquo;s, says no one goes as far as Dr. Murray to make sure everyone is kept in the loop of patient care. He doesn&rsquo;t just send a piece of tissue or wait for the scan to come back. He sends as much background as possible to the pathologists to help them before they even look at the microscope.</p>

<p>He sends emails to Pathology to inform staff of details about an upcoming tumor surgery including the radiology findings and any significant clinical concerns. He visits the team with any special issues and when time allows, he will present patient cases at the Neuro-Oncology tumor board&nbsp;prior to tumor surgery so the pathologists can review the images and hear about plans and concerns of the neurosurgeons regarding the case.</p>

<p>&ldquo;For some types of tumors (and many other conditions), knowing what the imaging studies show is quite important in rendering an accurate pathology diagnosis,&rdquo; Dr. Margraf said. &ldquo;His approach also improves communication between the various specialties, both during the tumor board conference and after. He always emphasizes how much Neuro-Oncology is a team effort and all caregivers, not just the pathologist, benefit from this approach. I think this truly optimizes care for the patient and family.&rdquo;</p>

<p>Dr. Murray&rsquo;s team approach and emphasis on communication includes more than physicians. On every email, he copies Rand, the social worker, and Peggy Johnson in Pastoral Care. He consistently invites team members (nurse practitioners, nurses, social workers and chaplain) to attend every formal diagnosis conference and every progression on treatment or relapse conference, as well as every end-of therapy conference.</p>

<p>&ldquo;He trusts that everyone will bring their professional best to the table for our patients and their families,&rdquo; Rand said. &ldquo;He values every team member and their professional expertise, and he actively seeks out the knowledge and thoughts we each have to offer. Dr. Murray is as brilliant as he is humble. He&rsquo;ll often say that our RN, Ashleigh, and nurse practitioner, Mandy, are the brains behind the whole operation. I think that shows how highly he values his team members and their hard work and commitment to our patients.&rdquo;</p>

<p>The Neuro-Oncology team faces tough challenges every day. They treat patients for tumors in the brain, brainstem, optic tract and spine, as well as neurofibromatosis and more.</p>

<p>Dr. Murray admits that these day-to-day battles of life and death wear on him. He places the heartache after the death of a patient away somewhere and says he may walk around with a permanent case of post-traumatic stress disorder.</p>

<p>But Dr. Murray moves on and says he tries his best to put his job behind him while he&rsquo;s at home with his wife and son.</p>

<p>&ldquo;Obviously you feel for these families and certainly after I had my own child it's become more difficult as it would for anybody because you start feeling &hellip; putting yourself in the shoes of those parents,&rdquo; Dr. Murray said. &ldquo;Of course it's most difficult when I'm dealing with a child who is exactly the age of my child and happens to be boy like my own son. It's very difficult. I have to catch my emotions and be relatively emotion free when I'm talking to families like that. So it's gotten more difficult since I've had a child, but not impossible.</p>

<p>&ldquo;And also except for a couple of exceptions most of these kids will be cured. They will be fixed. They may have some damage and some side effects that last a long time but most of these kids are going to be OK. I've learned a lot about the human spirit from a parent&rsquo;s point of view. It is stronger than you can imagine. It's just witnessing it over and over again. Parents and families in spite of hearing horrible news are almost always able to rally and create something special for their child. Whether it's a child who is going to live or a child who is going to die, it's remarkable how families can create an environment around them to create something really good.&rdquo;</p>

<p>Just like the Neuro-Oncology family he&rsquo;s created at Cook Children&rsquo;s &hellip; something really good.</p><h4><strong>#erasekidcancer</strong></h4><h4>If we had one wish it would be that no child would ever experience cancer. That's why we're asking you to join forces with Cook Children's oncologists, researchers, patients and families to help make that wish come true. <a href="https://www.cookchildrens.org/erasekidcancer/Pages/default.aspx">Click here to help.</a></h4><h4>The funds we raise together during September, Childhood Cancer Awareness Month, will support life-saving research, treatments, technology and programs for patients and families at Cook Children's in Fort Worth, Texas. Please help us create hope for kids, families and caregivers who are fighting every day to <a href="https://www.cookchildrens.org/erasekidcancer/Pages/default.aspx">#erasekidcancer.</a></h4>]]></description><category><![CDATA[Our Experts,Neuro-oncology,cancer,Hematology,Neurosciences,Jeff Murray,EKC,Oncology,Intranet,Our People,Trending,Trend]]></category>
            <pubDate>Fri, 23 Feb 2018 13:10:22 -0600</pubDate>
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                        <title>Lifesaving Gift Inspires Patient’s Brother to Donate Bone Marrow</title>
                        <link>https://www.checkupnewsroom.com/a-perfect-match/</link>
                        <guid>https://www.checkupnewsroom.com/a-perfect-match/</guid><pp:caseid>231879</pp:caseid><pp:boilerplate><![CDATA[<p>&nbsp;</p>

<p>&nbsp;</p>
]]></pp:boilerplate><description><![CDATA[<p><img alt="" src="//content.presspage.com/uploads/1065/500_cover-7.jpg?x=1505834257946" style="width: 500px; height: 394px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />At first glance, brothers Garrett and TJ Little don&rsquo;t share a whole lot in common.</p>

<p>First, there&rsquo;s a seven-year age difference. Then, Garrett is married and an operations manager for a company in Las Colinas, while TJ is a single, free spirt and an aspiring actor working summer stock in Kentucky with dreams of Broadway.</p>

<p>But get past the surface and you will find Garrett and TJ share a bond like never before &ndash; one has been saved by a bone marrow transplant and the other has provided that life giving donation to someone else.</p>

<p>Their story begins on an early Saturday morning in February, 2013. TJ was a junior in high school. He felt more fatigued and dizzy while performing, but felt it was probably just due to his hectic rehearsal schedule. TJ later told his mother, Sherri that he didn&rsquo;t feel well and when his symptoms persisted they looked into it further.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_tj.jpg?x=1505834383182" style="width: 403px; height: 400px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />TJ went to visit his pediatrician, Tom Rogers, M.D., on a Thursday and had blood work done on a Friday before he was scheduled to go to church camp. The next day, TJ received a tap on his shoulder. It was his parents, Tom and Sherri, telling him that Dr. Rogers called and wanted them to go to the Cook Children&rsquo;s Emergency Department immediately.</p>

<p>&ldquo;At that point I was freaking out a little bit,&rdquo; TJ said. &ldquo;I was definitely freaking out because I didn&rsquo;t know what was going on. One of the weirdest moments was when we went to the emergency room and they gave us a private room, which generally doesn&rsquo;t happen in the ER. By private room, I mean door shut kind of room. The doctor came in and asked if I knew what was going on. The doctor said, &ldquo;I can tell you right now you either have aplastic anemia or leukemia. At that point, I didn&rsquo;t even know what aplastic anemia was.&rdquo;</p>

<p>Shortly after being admitted, TJ was diagnosed with aplastic anemia, which is a blood disorder where the body&rsquo;s bone marrow doesn&rsquo;t make enough blood cells. The disease affects approximately three in a million people.</p>

<p>And just like that, TJ&rsquo;s life was turned completely upside down.</p>

<p>He was admitted to Cook Children&rsquo;s and immediately pulled out of school for his junior year at Keller high school. His siblings weren&rsquo;t a match for bone marrow transplant, so he initially underwent a six-month immune suppression therapy in hopes this would provide the cure for his disease.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_updatedpictures050.jpg?x=1505834401918" style="width: 500px; height: 375px; border-width: 2px; border-style: solid; margin: 5px; float: left;" />&ldquo;I was really hopeful that TJ would have a matched sibling, even though we know the chances of a sibling matching are only 25 percent,&rdquo; said <a href="http://www.cookchildrens.org/doctors/pages/bio.aspx?first=Richard&last=Howrey">Richard Howrey,M.D.</a>, medical director of the Aphresis Program at Cook Children&rsquo;s and the associate medical director of the Stem Cell Transplant Program. &ldquo;When we got the disappointing news that TJ didn&rsquo;t have a match in the family, we felt our best chance for cure was to give standard immunosuppressive therapy, in part because the high risk of serious complications associated with an unrelated bone marrow transplant.&rdquo;</p>

<p>At the end of that timeframe, shortly after he went back to school for his senior year, his doctors told TJ the immune suppression therapy was not the long term answer they had hope for and he needed an unrelated donor bone marrow transplant.</p>

<p>For TJ, all of these life-changing (and life-saving) events couldn&rsquo;t have come at a worse time for a young man with big plans for his future.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_img-0456.jpg?x=1505834424157" style="width: 500px; height: 375px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />He had already started planning for college and a degree in musical theatre. He had 19 college theatre auditions scheduled for November, had been cast in a lead role in his high school&rsquo;s musical, was rehearsing for the high school fall show, which was to be performed at the end of October and was directing his senior play.</p>

<p>TJ went to his doctors and asked for enough time before receiving his transplant to finish at least two of his high school obligations. Cook Children&rsquo;s and Be The Match found a 10 for 10 match for TJ. His transplant took place on Nov. 8, 2013, a day he now celebrates as another birthday. TJ finished his responsibilities with proceeds from his senior directed play going to Cook Children&rsquo;s.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_dsc00349.jpg?x=1505834442363" style="width: 500px; height: 375px; border-width: 2px; border-style: solid; margin: 5px; float: right;" />Prior to the surgery, TJ&rsquo;s parents hosted a &ldquo;Shaving TJ&rsquo;s Head Party&rdquo; at their home. In addition to family and friends, a representative from <a href="https://bethematch.org/">Be The Match</a> was invited to come and swab people who were interested in signing up with the registry. The age range for donors at the time was between 18 and 40 years of age, which eliminated many of the guests who were high school age or parents of high school students who were older. But Garrett decided to sign up and was swabbed that evening.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_swab.jpg?x=1505834688734" style="width: 500px; height: 345px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />&ldquo;The event was a party. It was fun. It was celebratory,&rdquo; Garrett said. &ldquo;I weighed the cost of swabbing, but at the time I didn&rsquo;t fully know the weight of that decision. I really wanted to get on the registry though. The thought going through my head was when TJ was diagnosed, they tested me and our younger brother, Austin, but neither one of us was a match. I found out that it&rsquo;s very common for siblings to not to be a match. That&rsquo;s sad being the older brother and I can&rsquo;t give TJ what he needs to get healthy. I thought, &lsquo;I would love to be able to do this for somebody else&rsquo;s brother.&rsquo;&rdquo;</p>

<p>TJ has a lot to celebrate now. He&rsquo;s come a long way from the days of chemotherapy, radiation treatment and 108 transfusions.</p>

<p>&ldquo;During that time it was very much about what do I have to do now to pursue theatre in the future,&rdquo; TJ said. &ldquo;I had to set aside acting for a while to get healthy, but I think it was the right choice. It worked out perfectly.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_dsc00327.jpg?x=1505834740011" style="width: 500px; height: 303px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />TJ is currently entering into his junior year at Coastal Carolina University in Conway, S.C. He is pursuing a degree in musical theatre and is in Italy this fall studying Physical Theatre. As it turns out, TJ donor was from Germany. If both parties agree, donors and recipients have the option to meet. TJ and his donor have contacted each other through Facebook and texts, and plans are underway for TJ and his donor to finally meet face to face during his trip abroad.</p>

<p>&ldquo;We had pretty much known from the beginning that we would want to keep in contact with this person,&rdquo; TJ said. &ldquo;I had to wait two years and then it was sign this form and sign that form. He had to sign a consent as well. He actually reached out to me first. I will meet him in the fall and it&rsquo;s going to be awesome. It will be really interesting. I&rsquo;m excited for sure. He seems very down to earth and very understanding.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_img-1827.jpg?x=1505835794210" style="width: 320px; height: 240px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />So as TJ&rsquo;s transplant story was coming to the kind of happy ending any actor would want to play, Garrett&rsquo;s story was just beginning.</p>

<p>Earlier this year, Garrett received a call to say he was a match for someone. Garrett admits to becoming nervous as he read about the procedure. As an analytical person by nature he couldn&rsquo;t help but think about all the details of the procedure. Plus, he&rsquo;s not a fan of needle sticks or blood. But after talking and praying with his wife Sheila, he knew this was something he sincerely wanted to do &ndash; to pay it forward for the help TJ received.</p>

<p>&ldquo;It was such an incredible coincidence that Garrett wasn&rsquo;t able to help his brother, but then had the opportunity to save the life of a complete stranger,&rdquo; Dr. Howrey said.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_anesthesiologist.jpg?x=1505836556241" style="width: 320px; height: 208px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />In July 2017, Garrett drove to Cook Children&rsquo;s for the first time since TJ had been discharged. Garrett said it brought back a flood of memories of when his younger brother was a patient there.</p>

<p>He arrived at 6 a.m. for the 8 a.m. procedure. The last thing Garrett remembers was him laughing and saying to the anesthesiologist, &ldquo;I like this guy.&rdquo;</p>

<p>The medical team drew more than a liter of bone marrow and everything appears to be a success. A year will go by before Garrett will have the opportunity to meet the person who received his bone marrow.</p>

<p>&ldquo;I would love to meet that person,&rdquo; Garrett said. &ldquo;TJ had to wait two years to get in contact with his donor because he was outside the United State. In the U.S., it&rsquo;s only a year. So my wife and I are definitely looking forward to making contact when that time frame&rsquo;s up.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_img-1843.jpg?x=1505835838429" style="width: 240px; height: 320px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />Garrett said his soreness continued for a month or so, but he has since returned to a 100 percent and he&rsquo;s so glad that he took the time out to swab his cheek at TJ&rsquo;s party.</p>

<p>&ldquo;TJ and I have a quite an age gap between us,&rdquo; Garrett said. &ldquo;I remember growing up, playing video games and my younger brothers wanting to hang out or whatever with me. I thought they were such pests and I would get upset with them. But seeing them grow up and be in high school, I thought I want to be more a part of their lives. Then seeing TJ go through all of this, I was just like, &lsquo;Man, I really want good quality time with him. It made me want to be closer to him.&rdquo;</p>

<p>As they sit across from each other talking about their experiences, there&rsquo;s a brief pause. Neither looks at each other but the feeling is there. They are closer than ever before &hellip; a perfect match.</p>]]></description><category><![CDATA[EKC,cancer,Bone Marrow,Stem Cell,Transplant,Richard Howrey,Hematology,Oncology,Be The Match,Intranet,Our People]]></category>
            <pubDate>Tue, 26 Sep 2017 16:41:02 -0500</pubDate>
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                        <title>&#039;We Never Run Out of Hope&#039;</title>
                        <link>https://www.checkupnewsroom.com/we-never-run-out-of-hope/</link>
                        <guid>https://www.checkupnewsroom.com/we-never-run-out-of-hope/</guid><pp:caseid>224288</pp:caseid><pp:subtitle>What It&#039;s Like to Be a Pediatric Cancer Nurse</pp:subtitle><pp:boilerplate><![CDATA[<p>&nbsp;</p>

<p>&nbsp;</p>
]]></pp:boilerplate><description><![CDATA[<p><em>By Ashley Parrott</em></p>

<p>The Hematology/Oncology (H/O) floor at Cook Children&rsquo;s is its own world. Bright green walls lead the way among the hustle and bustle of the daily routines of patients, families and doctors. But behind the miracles happening on the Hematology/Oncology&nbsp;floor is the dedication of pediatric nurses like Paige Cravens.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_paige.jpg?x=1504626294434" style="width: 96px; height: 96px; border-width: 2px; border-style: solid; margin: 5px; float: left;" />Though she has only been with Cook Children&rsquo;s for two years, Cravens has quickly become a valued nurse on the H/O floor because of her genuine passion for children.</p>

<p>&ldquo;Paige has one of the most caring and compassionate personalities on our floor,&rdquo; Cook Children&rsquo;s Hematology/Oncology Nurse Manager Jessica Williams Henry, RN said. &ldquo;Whenever you meet her you can feel that her energy is positive and you feel safe with her.&rdquo;</p>

<p>Although the stress and nature of a Hematology/Oncology nurse is demanding, Paige is known as a light to other nurses and patients on the floor.</p>

<p>&ldquo;She&rsquo;s really become a leader,&rdquo; Williams Henry said. &ldquo;It&rsquo;s shifted our culture on the H/O floor because if it&rsquo;s a bad day and Paige shows up, it&rsquo;s instantly better because if she can see the positive in something then everyone else is going to try to see it too.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_offtosee....png?x=1504626311555" style="width: 500px; height: 378px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />The diagnoses on the H/O floor are serious and often require immediate treatment, but Paige is with her patients from beginning to end, offering support, encouragement and treating her patients as if they are her own family.</p>

<p>&ldquo;I think my favorite thing to witness is the journey from diagnosis to completion of therapy,&rdquo; Cravens, a registered nurse (RN), said. &ldquo;When you admit a newly diagnosed child, the emotions in the room are heavy, as you can imagine. Through the tears and hard conversations, I always try to squeeze in some words similar to &lsquo;I am not saying this will be easy, but I mean it when I say this place will become home and these people will become like family,&rsquo; and most often that is exactly what happens.&rdquo;</p>

<p>Not only does Cravens understand the practices and general knowledge of nursing, she is able to recognize minor changes and is known to always push for more to ensure the best care for her patients.</p>

<p>&ldquo;Paige is really proactive and a huge advocate for her patients,&rdquo; Cook Children&rsquo;s Nurse Manager Jordan Richter, RN, said. &ldquo;She&rsquo;s very in tune to her assessment skills and doing everything for the patient to keep them safe. Paige is just one of those nurses that you wish you could clone.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_paige.png?x=1504626327571" style="width: 371px; height: 400px; border-width: 2px; border-style: solid; margin: 5px; float: left;" />Some may believe it is best to detach from emotions when working in a children&rsquo;s hospital, however Cravens is known as a genuine nurse who will shed tears with heartbroken families, but also celebrate in the accomplishments of her patients.</p>

<p>&ldquo;Paige will cry with a family, she&rsquo;ll laugh with a family, she gets down at that level,&rdquo; Richter said. &ldquo;She&rsquo;s raw with her emotions and families can tell she cares. She&rsquo;s the definition of what anyone would want for a H/O nurse.&rdquo;</p>

<p>The mere thought of an extended stay in a hospital is typically something most children would want to avoid, but the magic that happens at Cook Children&rsquo;s is enough to change the stigma of a place where healing can happen.</p>

<p>&ldquo;The kids are so resilient, it amazes me. They have to trade out going to school with hospital admissions, friends for nurses and doctors, but more often than not they come walking through the door with a big smile on their face,&rdquo; Cravens said. &ldquo;They face things that no person, no child, should ever have to go through, yet they still have joy. They have this will to fight, and they never give up. They find a way to overcome.&rdquo;</p>

<p>Although miracles do happen, pain and loss also reside on the Hematology-Oncology floor.</p>

<p>&ldquo;The difficult situations seem endless at times. Our patients and families experience so much loss in all senses of the word, from the loss of all normalcy, togetherness as a family, financial security, loss of hair to sometimes loss of life itself,&rdquo; Cravens said. &ldquo;Watching it all unfold rips your heart out. But hope never runs out and I think that is what sustains each of us. We watch whole towns come together in support, kids pushing past the impossible, fears conquered, faith restored and prayers lifted. There is beauty in that.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_friends.png?x=1504626342071" style="width: 500px; height: 371px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />For Cravens, a nursing career at Cook Children&rsquo;s is more than just a job, it&rsquo;s a family and a place where magic and miracles are real.</p>

<p>&ldquo;We had a little girl who pretended to be Elsa, wig and all, who would call Cook Children&rsquo;s her castle,&rdquo; Cravens said. &ldquo;She loved being at her castle, and when it came time for her last chemo, we all celebrated with posters and balloons. When she caught on that it was her last time coming in to stay at the castle, she kicked and screamed the whole way out. That really says something about this place.&rdquo;</p>]]></description><category><![CDATA[#erasekidcancer,EKC,cancer,Hematology,Oncology,Hematology and Oncology,Intranet,Our People]]></category>
            <pubDate>Tue, 26 Sep 2017 16:40:08 -0500</pubDate>
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                        <title>Pediatric Cancer Research Is Not &#039;One Size Fits All&#039;</title>
                        <link>https://www.checkupnewsroom.com/pediatric-cancer-research-is-not-one-size-fits-all/</link>
                        <guid>https://www.checkupnewsroom.com/pediatric-cancer-research-is-not-one-size-fits-all/</guid><pp:caseid>226236</pp:caseid><pp:subtitle>The role of a hematologist/oncologist involved in unique, innovative patient care</pp:subtitle><pp:boilerplate><![CDATA[<p>&nbsp;</p>

<p>&nbsp;</p>
]]></pp:boilerplate><description><![CDATA[<p>Physician. Scientist. Researcher.</p>

<p><img alt="" src="https://www.cookchildrens.org/SiteCollectionImages/PhysicianBios/mGranger.jpg" style="width: 230px; height: 230px; float: right; margin: 5px;" />The role of a pediatric <a href="https://www.cookchildrens.org/hematology-oncology/Pages/default.aspx">hematologist and oncologist</a> stretches far beyond the walls of Cook Children&rsquo;s medical center because the physician participates in clinical trials and collaborates with other experts both nationally and internationally.</p>

<p><a href="https://www.cookchildrens.org/doctors/pages/bio.aspx?first=Meaghan&last=Granger">Meaghan Granger, M.D.,</a> medical director of the <a href="https://www.cookchildrens.org/hematology-oncology/specialty-programs/Pages/mibg-therapy.aspx">Neuroblastoma</a> program at Cook Children&rsquo;s, is involved in unique and innovative patient care as well as important research that could have a long-lasting impact on the treatment of pediatric patients in the near future.</p>

<p>She is involved in multiple trials at Cook Children&rsquo;s and is an active member in research with the Children&rsquo;s Oncology Group (COG) and New Approaches to Neuroblastoma Therapy (NANT). Dr. Granger is the lead COG primary investigator for Cook Children&rsquo;s and her work has made Cook Children&rsquo;s the highest enrolling NANT institution in the nation.</p>

<p>That collaboration is so important in cancer research because it means more patients participating and more data to review in the search for a cure.</p>

<p>&ldquo;Pediatric cancer is unique,&rdquo; Dr. Granger said. &ldquo;We can't just take adult studies and apply it to these kids. It's not one size fits all. When you look at survival rates, things were very dismal in the 1980s. With each decade since you have seen the survivor curve go up. That's because of the clinical trials and supportive care that pediatric patients receive now."</p>

<p>The group approach among pediatric hematologists and oncologists also creates a virtual think tank. It allows physicians like Dr. Granger to bounce ideas off of one another and share best practices with one another.</p>

<p>"It is a very great thing for all of us. The virtual group of neuroblastoma doctors I'm in, we can call each other. People call me and ask what I think and I can call them," Dr. Granger said. "That happens on maybe a daily basis. The amount of discussions we have with just four or five of my peers and to look at the treatment and research ... it would take a patient 6 months to see that many doctors and get that many opinions. It's so valuable. We can get a lot done in a short period of time. It's invaluable to get other expert opinions on things. In our field, we see things happen all the time that we don't expect."</p>

<p>Dr. Granger credits her &ldquo;incredible research staff&rdquo; for making the program successful. Their depth of experience helps them identify the right patients for specific trials and stay in contact with the families to gather and document data. She also praises the patients and their families for participating in the trials. That research may help kids in the future, but that's not the immediate goal. The objective is to find the best course of treatment and care to help the child participating in the trial as quickly as possible.</p>

<p>"I have a high level of confidence that these studies make a difference," Dr. Granger said. "I think that's a big part of why families want to bring their children to Cook Children's because we have so much to offer them when they come here. We generally have several options of treatment to offer them. We help people by giving them hope. Everyone involved in the NBL program has a deep calling and a passion to truly help people.&rdquo;</p>]]></description><category><![CDATA[News,Cook Children&#039;s,Our Experts,Hematology,Oncology,Hematology and Oncology,EKC,Intranet]]></category>
            <pubDate>Tue, 12 Sep 2017 15:26:23 -0500</pubDate>
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                        <title>The Survivor: Life After Cancer</title>
                        <link>https://www.checkupnewsroom.com/the-survivor-life-a/</link>
                        <guid>https://www.checkupnewsroom.com/the-survivor-life-a/</guid><pp:caseid>149759</pp:caseid><pp:subtitle>Mom details her family&#039;s life after diagnosis of Ewing&#039;s Sarcoma</pp:subtitle><description><![CDATA[<p>Matthew Grogan&rsquo;s first day of kindergarten started out like any other child&rsquo;s. He had a brand new back pack, all the supplies on the list, and was excited to meet his teacher and make new friends! He smiled proudly for his first day of school picture and off we went. Little did he know, what we already knew, that life was about to throw him a curve ball that would change the course of his life forever.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_matthewatschool.jpg?x=1474660290666" style="width: 406px; height: 400px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />On July 28, 2006, just days before school would begin; we heard the words that no parent wants to hear&hellip; &ldquo;Your child has cancer.&rdquo; It was the most terrifying; turn your world upside down, day of our lives. Matthew was 5 years old and had been diagnosed with a large Ewing&rsquo;s Sarcoma tumor in his right femur. He had complained of pain in his leg on two separate occasions that were weeks apart. We shrugged it off as growing pains. The third time Matthew complained, it was a summer afternoon and he had been running around outside. Later that night, he was tired and went to bed early. When I kissed him goodnight, he felt really hot. He had a fever, and no other symptoms &hellip; except his leg pain. I knew something was wrong, but never thought for a moment that it would be cancer. We headed to the pediatrician first thing in the morning and within an hour, an X-ray revealed a very large tumor. We were told it looked malignant. Our cancer journey had begun.</p>

<p>His first day of kindergarten would also be his first admission into Cook Children Medical Center. For the next 13 months, Matthew spent a minimum of four to five nights at Cook Children&rsquo;s every three weeks receiving chemotherapy. Cook Children&rsquo;s soon became our home away from home. Dr. Jeff Murray was Matthew&rsquo;s oncologist and he did an amazing job keeping us thoroughly informed of how they would treat and care for Matthew. Did I mention we were terrified? He talked us off the ledge, and we soon dug in, clung to our faith, and began the fight for our child&rsquo;s life.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_matthewathome.jpg?x=1474660307719" style="width: 500px; height: 256px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />Initially, Matthew had to adjust to so many invasive procedures that no 5 year old should have to experience. The first time his port was accessed with a needle for his treatment he was so anxious and tearful. Child Life came to his aide to distract him and before we knew it, we were all laughing. His treatments led to the inevitable; nausea/vomiting, hair loss, and mouth sores. Some days were better than others. But thru it all, everyone was upbeat and positive from the nurses, the child life specialists to the staff that brought our meal trays.</p>

<p>For something that was REALLY hard, Matthew often felt like he was there to play. Water gun fights with empty syringes, daily matches of Uno with the nurses, and lots of smiling and laughter was common. Was this really an oncology floor? If we had to be in a hospital so much of the time, we soon learned we were fortunate to have not only skilled physicians and staff, but people that made it bearable. Matthew actually looked forward to coming in!</p>

<p>Initially, we were told that amputation might be Matthew&rsquo;s only surgical option to get rid of the massive tumor. Five months into his chemotherapy treatments the MRI revealed that the medicine had shrunk the cancer significantly, allowing another surgical option.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_matthewgrogan.jpg?x=1474660568152" style="width: 500px; height: 338px; border-width: 2px; border-style: solid; margin: 5px; float: left;" />Matthew had his tumor removed at Texas Children&rsquo;s Hospital in Houston in December, 2006. In a 14-hour -surgery, seven inches of his femur was removed, and his own tiny fibula from his lower leg, was grafted in its place. A plastic surgeon then meticulously vascularized the bone: giving it a blood supply so that it would remain alive, allowing it to thicken and grow into a femur-sized bone over time. We were told the healing could be a bumpy ride and it was.</p>

<p>The upper junction of the grafted bone fractured leaving Matthew in a full body cast for seven months. After being wheelchair bound for a year and a half, Matthew finally was allowed to be up and relearn how to walk with his new bone. We were on the road to recovery, or so we thought. It wasn&rsquo;t long before we received the news that his complications were not over. Matthew&rsquo;s growth plate at the knee had closed due to trauma from the tumor resection. He would need to wear a shoe lift to make up for the difference in his leg length, and in time, he would need to undergo subsequent surgeries to lengthen his leg and correct the discrepancy.</p>

<p>His first leg lengthening surgery occurred at the age of 10, when he was placed in a large metal frame called an ilizarov. The apparatus involved three large rings, pins in his bone, and a daily regimen of turning screws and physical therapy which ensued for 5 months. Two inches of beautiful new bone eventually grew into the space that was created.</p>

<p>A year later, doctors nicked the growth plate in his left leg to help close the gap. Matthew was still left with a 3 inch discrepancy to recover. In April of 2015, Matthew had his final leg lengthening surgery. With 3 inches to obtain, and what turned into a very slow healing process, Matthew was in the iliazrov frame for a total of 16 long months. We lived from X-ray to X-ray waiting to hear those magical words, &ldquo;you are healed enough to remove your frame.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_matthew.jpg?x=1474660340127" style="width: 300px; height: 400px; border-width: 2px; border-style: solid; margin: 5px; float: left;" />On July 14 , 2016, Matthew had surgery to remove the ilizarov for good! Although he would need to continue with his crutches a while longer, Matthew was beyond thrilled to reach this huge milestone. His legs were finally even again and would be for the rest of his life. The timing couldn&rsquo;t have been better as we were just two weeks away from Matthew&rsquo;s 10 year survivorship. A celebration was in order!</p>

<p>My husband and I surprised him with a fun night out on the town with his closest friends, most who have walked beside and supported him since kindergarten when he was first diagnosed. They were chauffeured around Fort Worth in a Hummer limousine with music blaring, lots of singing, and pure elation. Victory!</p>

<p>Looking back over the past 10 years, we couldn&rsquo;t be more grateful for the doctors, nurses, and child life specialists at Cook Children who helped Matthew become a survivor! Matthew continues with yearly follow ups in the Life After Cancer Program. Lisa Bashore and Dr. Heym keep up with his tests, keep us current on survivor research, and ALWAYS keep us laughing!</p>

<p>From the time we entered the doors at Cook Children, it became our second home. The amazing, caring staff became our family. We will forever be grateful for the blessing Cook Children has been for Matthew and our family.</p>

<p>He stood strong. He fought hard. He won!!! Celebrating our 10 Year Cancer Survivor!!!</p>

<p style="text-align: center;"><img alt="" src="//content.presspage.com/uploads/1065/500_survivorphoto.jpg?x=1474660355760" style="width: 500px; height: 263px; border-width: 2px; border-style: solid; margin: 5px;" /></p>

<p>&nbsp;</p><p><strong>#erasekidcancer</strong></p><p>To support kids like Matthew and the&nbsp;Cook Children&rsquo;s Hematology and Oncology Center, visit <a href="http://erasekidcancer.org">erasekidcancer.org</a>.&nbsp;<span>September is Childhood Cancer Awareness Month. This month, we're pulling back the curtain to share what Cook Children's is doing to fight pediatric cancer. Stories will be shared to reflect the hearts of our caring professionals and volunteers, the brains of our clinicians and researchers and the courage of our patients and families.</span></p><p>&nbsp;</p>]]></description><category><![CDATA[Features,Our People,cancer,Hematology,Oncology,EKC]]></category>
            <pubDate>Fri, 30 Sep 2016 10:39:49 -0500</pubDate>
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                        <title>The fighter: Young mom battles cancer</title>
                        <link>https://www.checkupnewsroom.com/the-fighter/</link>
                        <guid>https://www.checkupnewsroom.com/the-fighter/</guid><pp:caseid>25899</pp:caseid><pp:subtitle>Inspiring story of woman living with Ewing’s sarcoma</pp:subtitle><pp:boilerplate><![CDATA[<p>&nbsp;</p>

<p>&nbsp;</p>
]]></pp:boilerplate><description><![CDATA[<p><img alt="" src="http://content.presspage.com/uploads/1065/500_joshlynn.jpg" style="border-bottom: 2px solid; border-left: 2px solid; margin: 5px; width: 240px; float: right; height: 320px; border-top: 2px solid; border-right: 2px solid" />Joshlynn Wilson fights her disease for one simple, but most incredible, reason &ndash; Zoey, her 2-year-old daughter.</p>

<p>In August of 2013, Joshlynn was diagnosed with <a href="http://kidshealth.org/PageManager.jsp?dn=CookChildrens&lic=403&cat_id=20660&article_set=62801&ps=104" target="_blank">Ewing&rsquo;s Sarcoma</a>, an aggressive bone cancer, occurring mainly in childhood and adolescence. Suddenly the 19-year-old single mom faced a whole new set of challenges.</p>

<p>&ldquo;I was afraid my life was over,&rdquo; she said. &ldquo;I was afraid of what would happen to my daughter if I wasn't there. My little girl is my life. I thought, &lsquo;Why me?&rsquo; Everything you could possibly think of went through my head. I had no idea how bad or what it was until we did tests&nbsp;and scans. I learned no matter what to be positive and you will make it.&rdquo;</p>

<p>Joshlynn knew she wouldn&rsquo;t go through her journey alone. In her home of Mineral Wells, Texas, she has her parents and four siblings. Although, they&rsquo;ve been there for her, Joshlynn said her diagnosis placed a strain on everyone.</p>

<p>&ldquo;At first it was really hard for everyone to accept that I had cancer,&rdquo; she said &ldquo;Everyone was afraid to talk about it or even ask questions because they didn't know how I would feel about it. But for me,&nbsp;talking about it helps me. And now my family, my closest friends and I are closer than ever and they really support me.&rdquo;</p>

<p>While family and friends supported her, only those with similar experiences could truly understand Joshlynn. She struggled with the news of the cancer and mainly the impact it would have on her little girl.</p>

<p>&ldquo;Being away from my daughter so much for treatment has been the toughest part,&rdquo; she said. &ldquo;Zoey is still young so she doesn&rsquo;t quite understand why I'm gone all the time and it really hurts me. It&rsquo;s hard when I&rsquo;m home too because I&rsquo;m sick and not able to do things by myself like I use to.&rdquo;</p>

<p>Joshlynn found not only treatment for her cancer, but support from peers at Cook Children&rsquo;s. She describes her physician, <a href="http://www.cookchildrens.org/FindCare/Pages/PhysicianDetails.aspx?phy=593" target="_blank">Karen Albritton, M.D.</a>,&nbsp;as &ldquo;absolutely amazing.&rdquo; Dr. Albritton is the medical director of the <a href="http://www.cookchildrens.org/SpecialtyServices/HematologyOncology/Specialties/Pages/Adolescent-and-Young-Adult.aspx" target="_blank">Adolescent and Young Adult (AYA) Program</a> in the&nbsp;Hematology and Oncology Center at Cook Children&rsquo;s.</p>

<p>&ldquo;Dr. Albritton truly cares and understands all her patients,&rdquo; Joshlynn said. &ldquo;Cook Children&rsquo;s is an amazing place. They gave me strength and courage to beat this. Everyone in the AYA program has helped me out so much. They have changed my life. It's really amazing to have people that know what you&rsquo;re going through and understand you, when sometimes your family can't.&rdquo;</p>

<p>For now, there&rsquo;s one family member that doesn&rsquo;t understand everything that Joshlynn&rsquo;s going through and that&rsquo;s just fine with her. Zoey will someday understand how her mommy battled cancer.</p>

<p>&ldquo;It's really hard at times. Having cancer and doing treatments and being gone so much never gets easier,&rdquo; Joshlynn said. &ldquo;My daughter makes me want to fight and beat this even more. You have to keep a positive attitude, and know that no matter what,&nbsp;just believe in yourself.&rdquo;</p>

<p>After all, that&rsquo;s the attitude that makes fighters great.</p>]]></description><category><![CDATA[Features,ewingssarcoma,cancer,parenting,People,Our People,AYA,Karen Albritton,EKC]]></category>
            <pubDate>Fri, 03 Jun 2016 11:17:18 -0500</pubDate>
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                        <title>Luke&#039;s story: #erasekidcancer</title>
                        <link>https://www.checkupnewsroom.com/lukes-story-erasekidcancer/</link>
                        <guid>https://www.checkupnewsroom.com/lukes-story-erasekidcancer/</guid><pp:caseid>88585</pp:caseid><pp:subtitle>Child details his fight against cancer</pp:subtitle><pp:summary><![CDATA[<p>On Tuesday, Sept. 1, Cook Children's began this year's #erasekidcancer campaign for Children's Awareness Month with a ceremonial 1kwalk.&nbsp;&nbsp;Fifth grader Luke Lange, who&rsquo;s in remission for Hodgkin&rsquo;s Lymphoma, stepped up to the podium and lowered the microphone to fit his 10-year-old height to share what Cook Children&rsquo;s means to him. We found it so inspiring, we thought everyone should hear his story.</p>
]]></pp:summary><description><![CDATA[<p><span><img alt="" src="http://content.presspage.com/uploads/1065/500_lukepicture.jpg" style="width: 266px; height: 400px; border-width: 2px; border-style: solid; float: right; margin: 5px;" />Hello everyone. My name is Luke Lange. What a beautiful day for a walk to help erase cancer. I am very honored to be with you today and to have the opportunity to tell you my story.</span></p>

<p><span>I like to think of myself as a pretty normal kid. I enjoy football, basketball and golf. I like to hang out with my friends and of course obeying my parents. When I was in third grade, something happened that changed my normal years into my most challenging.</span></p>

<p><span>My grandparents came into town for a Veteran's Day celebration at our school. My grandmother noticed my neck was swollen on one side. She is always giving my sister and me the "grandmother inspection" so I didn't think much of it. I didn't feel sick so I didn't think anything was wrong.</span></p>

<p><span>After a few months of antibitiocs, blood tests, scans and even a biopsy all of which came back fine, my doctor decided to remove the swollen lymph nodes so everyone would stop worrying. In fact he said, "Let's get this done so you guys can go and enjoy spring break."</span></p>

<p><span>Once the lymph nodes were removed, the results showed I had Hodgkin's lymphoma or in simple terms: cancer. Spring Break was replaced with surgery to put in a port and I started my first round of chemo. My third grade year was over. My family and I were now focused on getting me healthy.</span></p>

<p><span>Before this, I had never stayed in the hospital overnight. Now I would check in for days with a machine hooked up to me constantly to give me medicine. Sometimes when I would like getting out of the bed, I would walk the halls of the cancer floor. As I walked the halls with my family and friends I noticed that some kids just like me and sometimes younger didn't have family with them during treatment. Sometimes those kids would only have a nurse or a child life specilaist with them during chemo. I can't imagine how they felt.</span></p>

<p><span>Everyone I met and dealt with at Cook Children's made dealing with cancer the best that it can be. Yes, I had to do the treatment, get sick, follow the rules and when my counts get low, I was the one that had to go into isolation, but the team here at Cook Children's was with me every step of the way. I always felt safe because my parents and so many people were there to support me.</span></p>

<p><span>Having cancer is scary for everyone. My family and friends and the team here at Cook Children's prayed and supported me and our family. It takes so many people to fight this disease.</span></p>

<p><span>My parents tell me that having cancer was a chapter in my life. It will and has changed my life forever. One good thing that came from this experience is that I designed a shirt to help me and other cancer patients not feel so sick while they are doing treatment. I was given the opportunity to partner with Mark Cuban. How cool is that? But one of the most important things I learned is that we all have to help each other. Especially, those who need our help.</span></p>

<p><span><img alt="" src="http://content.presspage.com/uploads/1065/500_lukeandfamily.jpg" style="width: 500px; height: 333px; border-width: 2px; border-style: solid; margin: 5px; float: left;" />Today is the kick off to Childhood Cancer Awareness Month. Just by you being here, you've made a commitment to help kids like me. Thank you! In a few minutes, we will begin the walk. We are walking for the kids and their families on the floor who would love to join us, but can't. We are walking because we know that everyone can help make a difference.</span></p>

<p>You have inspired our family to give back. Our family can do many things, but we do not have the knowledge and the expertise that each of you have to help "Erase Cancer." Our position on the team is to drive awareness and help raise much needed funds so you guys can stay focused on the task at hand.</p>

<p>To kick off the month and this walk, we would like to donate $5,000 to help ERASE CANCER!</p>

<p>&nbsp;</p>]]></description><category><![CDATA[Features,#erasekidcancer,cancer,Hematology,Oncology,Hematology and Oncology,Cook Children&#039;s,Erase,kid,EKC]]></category>
            <pubDate>Wed, 23 Sep 2015 10:13:33 -0500</pubDate>
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