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                    <pubDate>Thu, 16 Dec 2021 23:37:44 +0100</pubDate>
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                        <title>New Camera System Allows Families to See Babies Inside Cook Children&#039;s NICU</title>
                        <link>https://www.checkupnewsroom.com/new-camera-system-allows-families-to-see-babies-inside-cook-childrens-nicu/</link>
                        <guid>https://www.checkupnewsroom.com/new-camera-system-allows-families-to-see-babies-inside-cook-childrens-nicu/</guid><pp:caseid>486385</pp:caseid><description><![CDATA[<p><span><span><span><span>Dressed in a Santa onesie for the holidays, 5 &frac12;-month-old Parker lies in a crib, his arms and legs paddling the air as expressive blue eyes dance back-and-forth between his mom and nurse.</span></span></span></span></p><p><span><span><span><span>Parker arrived at <a href="https://www.cookchildrens.org/services/neonatology/nicu">Cook Children&rsquo;s Neonatal Intensive Care Unit</a> (NICU) on June 29 for treatment of chronic lung disease and heart defects after being born two-and-a-half months early and weighing 1 pound 10 ounces. A complication with umbilical cord blood flow contributed to his premature birth and development issues.<img alt="" src="https://content.presspage.com/uploads/1065/1920_7g9a5729.jpg?x=1639594256165" style="float:right; height:333px; margin:5px; width:500px" /></span></span></span></span></p><p><span><span><span><span>Since then, <a href="https://www.cookchildrens.org/">Cook Children&rsquo;s</a> NICU has been home for Parker and his mom, Misty Kent of Brownwood, who stays with him each day and sleeps at the nearby Ronald McDonald House at night. His dad makes the two-and-a-half-hour drive from their family&rsquo;s home to see him on weekends. But Parker&rsquo;s grandparents and siblings&mdash;two sisters and two brothers, whose ages range from 14 to 21&mdash;have seen him only once when his condition worsened to the point that physicians called the family in.</span></span></span></span></p><p><span><span><span><span>&ldquo;They got to come up and see him for two hours, but they didn&rsquo;t get to touch him. He was so little then,&rdquo; Kent says, glancing at Parker, who now weighs 10 pounds. &ldquo;It has been a journey, to say the least.&rdquo;</span></span></span></span></p><p><span><span><span><span>But a newly installed camera system in the NICU may help ease some of the stress for Parker&rsquo;s family and others like them&mdash;especially with restricted visitation in the pandemic&mdash;by giving them a chance to lay eyes on their babies whenever they want. The system, created by AngelEye Health, went live last week, allowing families 24-hour-a-day access to their babies via individual room cameras, says Sheralyn Hartline, RN, and NICU director at Cook Children&rsquo;s.</span></span></span></span></p><p><span><span><span><span>Funded by private donors in the community, AngelEye cameras&mdash;a total of 106 in the NICU&mdash;are set over patients&rsquo; beds and turned off only if patients are out of bed or if care is being performed, she says. One access link is given to the NICU patient&rsquo;s mom, who then can share with other family and friends, Hartline says.</span></span></span></span></p><p><span><span><span><span>The AngelEye system will benefit the parents and families alike, she says.</span></span></span></span></p><p><span><span><span><span>&ldquo;This will allow our parents to go home, get a nice rest and still have the comfort of looking at their baby from home,&rdquo; she says, adding many of them live out-of-town and face long travel distances. &ldquo;It&rsquo;ll allow grandparents and siblings to see the baby, too, because many people haven&rsquo;t been able to meet the newest family member due to COVID restrictions.&rdquo;</span></span></span></span></p><p><span><span><span><span>COVID restrictions limit families to two visitors during an entire NICU stay, Hartline says. An average NICU stay lasts about 20 days, but some patients like Parker remain for months, she says.</span></span></span></span></p><p><span><span><span><span>&ldquo;We&rsquo;re hoping the cameras will help take the place for some of what&rsquo;s been missing for quite a while now,&rdquo; Hartline says. &ldquo;It will allow for some family moments we haven&rsquo;t been able to have over the past year and a half.&rdquo;</span></span></span></span></p><p><span><span><span><span>As soon as the cameras were turned on, it made a difference for Parker&rsquo;s family, Kent says.</span></span></span></span></p><p><span><span><span><span>&ldquo;Our family is over the moon. This morning, as soon as it went live, I sent a link to Parker&rsquo;s dad and grandma, and they were both on it within two minutes,&rdquo; she says. &ldquo;And, of course, grandma cried because she was so excited to be able to see him.&rdquo;</span></span></span></span></p><p><span><span><span><span>His siblings also planned seeing him on camera later in the day, she says.</span></span></span></span></p><p><span><span><span><span>It is unclear how much longer Parker&mdash;who needs a tracheostomy tube to breathe and uses a gastrostomy-button for feeding&mdash;will remain in the NICU.</span></span></span></span></p><p><span><span><span><span>&ldquo;We&rsquo;re still watching his heart pretty closely,&rdquo; says Kaitlin Tarver, RN, who works in the NICU.</span></span></span></span></p><p><span><span><span><span>His heart and lungs might continue to develop on their own in the next couple of weeks, she says, or he may need surgery to repair two holes in his heart before he goes home. In the meantime, they&rsquo;re placing him on the floor to play on his belly, sitting him up with a support pillow, putting him in a swing or just getting him out of bed to look at the sunshine, Tarver says.</span></span></span></span></p><p><span><span><span><span>Kent understands the challenges her son faces in the coming weeks.</span></span></span></span></p><p><span><span><span><span>&ldquo;He has been here a long time, but we&rsquo;ve overcome huge obstacles in these six months. We&rsquo;ll be here for a while longer, but that&rsquo;s what we need to do to get where we need to be,&rdquo; she says. &ldquo;Cook Children&rsquo;s is one of the biggest blessings we&rsquo;ve ever had in our lives. If he wasn&rsquo;t here, he would not be alive.&rdquo;</span></span></span></span></p><p><span><span><span><span>And while her son is in NICU, she sees AngelEye cameras as an asset in case she wants to check on him in the middle of the night or if she needed to go home for a school function for one of her children.</span></span></span></span></p><p>&nbsp;<span><span><span><span>&ldquo;I think people who aren&rsquo;t in the NICU or who have never had to face this situation might not understand the gravity of it and how this will help people going through it,&rdquo; Kent says of having room cameras available for families. &ldquo;If you&rsquo;ve never been in this situation, it&rsquo;s hard to grasp. But I can speak to it because I have other children and have never had to deal with this until now. It&rsquo;s a life-changing event&mdash;like your entire life changes.</span></span></span></span></p><p><span><span><span><span>&ldquo;So, if you cannot be here for whatever reason, it may give you peace of mind that your child is OK&mdash;you can see it with your own eyes,&rdquo; she says. &ldquo;It&rsquo;s a very, very big deal.&rdquo;</span></span></span></span></p>]]></description><category><![CDATA[nicu,baby,babies,Camera,live,stream,angel,eye,Trending]]></category>
            <pubDate>Wed, 15 Dec 2021 13:21:14 -0600</pubDate>
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                        <title>In Pictures: New Program Honors Patients with Happy Memories</title>
                        <link>https://www.checkupnewsroom.com/in-pictures-new-program-honors-patients-with-happy-memories/</link>
                        <guid>https://www.checkupnewsroom.com/in-pictures-new-program-honors-patients-with-happy-memories/</guid><pp:caseid>288749</pp:caseid><pp:subtitle>Family donates camera, canvases to Sit...Stay...PLAY as part of daughter&#039;s legacy </pp:subtitle><description><![CDATA[<p>Cystic Fibrosis had wreaked havoc on Madison Ramsey&rsquo;s body since she was born. While she had been in and out of the hospital more times than anyone could count, the vibrant, creative and joyful teen had a way of making the best out of her situation. Even when mucus buildup in her lungs made it nearly impossible for her to breathe, Madison did her best to stay positive.</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_26724618002-e614ce7614-o.jpg?x=1529953051531" style="margin: 5px; width: 263px; height: 398px; float: right;" /></p>

<div>Madison was, as her father called her, a real-life warrior princess.</div>

<div>&nbsp;</div>

<div>
<p>&ldquo;She loved anime, gaming online and editing videos,&rdquo; said Jeff Ramsey, Madison&rsquo;s father. &ldquo;One Halloween she dressed up as Princess Zelda. I think that&rsquo;s how she viewed herself.&rdquo;</p>

<p>While Madison had a warrior side, she also had a very soft spot for dogs.</p>

<p>&ldquo;When she was little, Madison had a book of all of the different breeds of dogs and she knew them all by heart,&rdquo; Jeff said.</p>

<p>That may help explain the especially close bond she had with Ralph, one of the therapy dogs in the <a href="https://www.cookchildrens.org/medical-center/family-support/Pages/sit-stay-play.aspx">Sit...Stay...PLAY</a> program at Cook Children&rsquo;s.</p>

<p>&ldquo;When Madison was in the hospital, she always looked forward to seeing Ralph,&rdquo; remarked Paula Ramsey, Madison&rsquo;s mother. &ldquo;When no one else could get her out of bed, Ralph could. Sometimes, that was the only way to get her to smile.&rdquo;</p>

<p>In 2015, Madison received some difficult news. Her lung function had dropped to 17 percent and oxygen was the only thing keeping the teen alive. Madison needed a double lung transplant.</p>

<p>&ldquo;It took me a while to accept the fact that if I did not do this, I would surely die,&rdquo; Madison posted on Instagram. &ldquo;I would never leave a legacy, never get to live, and leave my mark on the world.&rdquo;</p>

<p><img alt="" src="//content.presspage.com/uploads/1065/500_madison2015.jpg?x=1529953079914" style="margin: 5px; width: 309px; height: 316px; float: left;" />So with that, she decided to add her name to the waiting list for a lung transplant. When she got the news that a set of lungs had become available, she was rushed to a hospital in South Texas. She received her new set of lungs in the summer of 2015.</p>

<p>Her parents say the lungs gave them one &lsquo;magical&rsquo; year. Soon, she was able to breathe again. Though she was still in and out of the hospital, her health was improving. She was able to take senior pictures and even walk the stage at her high school graduation to pick up her diploma.</p>

<p>But soon, life would throw another curve ball.</p>

<p>Madison developed Post-transplant lymphoproliferative disorder (PTLD), a rare condition caused by her lung transplant. She had to undergo chemotherapy. Later, a mass developed in her chest. It punctured a lung and caused it to collapse. Madison could not catch a break. She had become so weak that she had to learn how to walk again.</p>

<div>
<p>&ldquo;There were times when she was so sick, it took two people to sit her up,&rdquo; said Paula. &ldquo;Ralph was instrumental in getting her through those days. She even had a picture of him in her hospital room.&rdquo;&nbsp;<img alt="" src="//content.presspage.com/uploads/1065/500_img-2262.jpg?x=1529953119396" style="margin: 5px; width: 300px; height: 400px; float: right;" /></p>

<p>Madison held out as long as she could.</p>

<div>
<p>At just 19 years old, she passed away.</p>

<div>In lieu of flowers, her family started a GoFundMe account and asked their friends and family to donate to the Sit..Stay..PLAY program at Cook Children&rsquo;s.</div>

<p>&ldquo;Madison found great comfort in the therapy dogs. We wanted to honor her memory by giving back to the program that meant so much to her,&rdquo; explained Jeff.</p>

<p>The Ramsey&rsquo;s raised $16,000 with their GoFundMe account. Then, they met with Kizzy Marco, coordinator of the Sit...Stay...PLAY program, and decided how the money would be used.</p>

<p>&ldquo;We decided to purchase a camera so patients and families could have high quality photos taken with the therapy dogs,&rdquo; said Paula.</p>

<p>They also decided to print photos of patients who were near the end of life on large canvases for their families to keep forever.</p>

<p>&ldquo;We really wanted families like ours to have a happy memory to look back on,&rdquo; said Paula.</p>

<p>The first such canvas went to the family of Danakah Abels.</p>

<p>Like Madison, 16-year-old Danakah loved Ralph. Her grandmother, Abby Jackson, said the teen enjoyed all of the therapy dogs at Cook Children&rsquo;s, but for some reason, she had a special bond with the eldest dog.</p>

<p>&ldquo;She just loved being with Ralph,&rdquo; Abby said. &ldquo;Kizzy would bring him to her room and they would just goof off. It would always brighten her day.&rdquo;</p>
<img alt="" src="//content.presspage.com/uploads/1065/500_danakah.jpg?x=1529953180673" style="margin: 5px; width: 345px; height: 302px; float: left;" /></div>

<div>
<p>Danakah was a normal, athletic teenager when she received a devastating diagnosis in March of 2017. The pain she had been feeling in her right knee wasn&rsquo;t due to a volleyball injury, instead she had Ewing sarcoma. In just a few short months, tumors had consumed much of her body.</p>

<p>One day, Kizzy and Ralph went to visit Danakah in her hospital room. They brought the brand new camera the Ramsey&rsquo;s had purchased for Sit..Stay..PLAY and took a few photos.</p>

<p>&ldquo;The picture we have on the canvas is Danakah hugging Ralph,&rdquo; Abby explained. &ldquo;She was so happy. It&rsquo;s a happy picture.&rdquo;</p>

<p>&nbsp;</p>

<p>The canvas was delivered to Danakah&rsquo;s room at Cook Children&rsquo;s the day she passed away in January 2018.</p>

<p>&ldquo;We were able to have it displayed at her memorial,&rdquo; Abby said with emotion in her voice. &ldquo;The photo captures Danakah completely.&rdquo;</p>

<p>It was around the same time that the Coonrod family was surprised by a package in the mail. Their daughter Bel had suddenly passed away weeks before after a long fight with cancer.</p>

<p>&ldquo;We knew if something was going to take her, it was going to be something sneaky,&rdquo; said Vicki, Bel&rsquo;s mother. &ldquo;She was a fighter. She fought to the very end.&rdquo;<img alt="" src="//content.presspage.com/uploads/1065/500_belcoonrod.jpg?x=1529953214258" style="margin: 5px; width: 322px; height: 429px; float: right;" /></p>

<p>Bel loved Ralph. Just like Madison and Danakah, he could illuminate Bel&rsquo;s day even when she didn&rsquo;t want to talk to anyone.</p>

<p>&ldquo;She would have taken him home if she could have. She loved him so much,&rdquo; Vicki said laughing. &ldquo;The two just had a weird connection. They could sit there for hours and be happy in each other&rsquo;s presence.&rdquo;</p>

<p>The canvas of Bel and Ralph now hangs in Bel&rsquo;s little sister&rsquo;s room. She was ecstatic to see it when it arrived and has insisted it stay with her.</p>

<p>&ldquo;We're really thankful to the family who donated the camera and canvases for other families,&rdquo; said Vicki. &ldquo;It is a reminder that we were in the hospital, but it is a reminder that there were happy times in the hospital.&rdquo;</p>

<p>For Madison&rsquo;s family, stories like these help their daughter&rsquo;s memory live on.</p>

<p>&ldquo;We know the impact the therapy dogs have on families. We&rsquo;ve seen the pain literally fade when Ralph or one of the other dogs was visiting our child,&rdquo; said Jeff. &ldquo;We know Madison is so happy to have her legacy live on this way.&rdquo;</p>

<p>Kizzy Marco, Ralph&rsquo;s handler, says she was blown away when she first met with the Ramsey&rsquo;s. She never dreamed the Sit..Stay..PLAY program would touch people&rsquo;s lives in such a deep and lasting way.</p>

<p>&ldquo;I watched Madison and Ralph become best friends over the course of several years, through many highs and lows,&rdquo; Kizzy said. &ldquo;To have a small role in carrying on her legacy is a true honor, and to be able to give families something to honor their children at such a difficult time is so special. Our program is indebted to Madison and her family.&rdquo;</p>
</div>
</div>
</div><div class="divmodule_boilerplate"><div class="div_summary"><div class="text_boilerplate"><strong>How to Help Sit...Stay...PLAY</strong></div><div class="text_boilerplate">&nbsp;</div><div class="text_boilerplate">The <a href="https://www.cookchildrens.org/medical-center/family-support/Pages/sit-stay-play.aspx">Sit...Stay...PLAY</a> program at Cook Children's is entirely funded by the generous contributions from community members; no fees are charged to our patients and families. Your support of this program ensures that this program serves patients for years to come.</div><div class="text_boilerplate">&nbsp;</div><div class="text_boilerplate"><p><a href="https://www.cookchildrens.org/html/giving/forms/Donate-SitStayPlay.html">Help us with your donation</a></p></div></div></div>]]></description><category><![CDATA[Sit,Stay,play,Ralph,Canvas,CF,cancer,Cystic,Fibrosis,Camera,Picture,Photo,Intranet,Our People]]></category>
            <pubDate>Mon, 25 Jun 2018 14:16:50 -0500</pubDate>
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