2023
September
20,
2023
|
13:58 PM
America/Chicago
By Ashley AntleWhen the Ray family embarked on a cruise in April to celebrate Caleb Ray’s 18th birthday, their focus was on celebrating a milestone, not the sickle cell disease Caleb has lived with since being diagnosed shortly after birth. Towards t...
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2022
October
03,
2022
|
11:03 AM
America/Chicago
By Linda GoelzerA recently approved drug is giving hope to younger patients living with sickle cell disease (SCD). Crizanlizumab is intended to reduce the frequency of pain crises and limit hospitalization in adult and pediatric patients ages 16 and ...
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September
28,
2022
|
12:45 PM
America/Chicago
By Heather DugeFour-year-old Winnie Babalola smiles all the time and talks nonstop. But it wasn’t always that way.Diagnosed with Sickle Cell Disease at two weeks old, Winnie faced a condition that can cause damage to organs and intense pain episodes....
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2021
September
28,
2021
|
13:52 PM
America/Chicago
Sickle Cell Awareness Month is recognized each September. For many of the more than 100,000 Americans living with the disease, acute painful episodes and chronic pain happen year-round. As if living with sickle cell disease (SCD) isn’t tough enough, ...
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June
18,
2021
|
09:42 AM
America/Chicago
Every time competitive dancer Kambri Gaut takes the stage—whether hip-hop dancing, tapping or clogging—she transforms into a silent warrior.The audience can’t see the battle that may be raging inside her as she moves to the music. At any given moment...
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2020
June
16,
2020
|
16:22 PM
America/Chicago
Sickle Cell Disease (SCD) causes an abnormal shape of the red blood cells. The red blood cells are shaped like crescents instead of circles. They don’t last long and they can get stuck in the blood vessels, which blocks the blood flow, often resultin...
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2019
July
18,
2019
|
16:47 PM
America/Chicago
By Ashley Parrott
Life as a parent with a child who has Sickle Cell Disease (SCD) is already frightening enough, but could you imagine this diagnosis with two of your kids?
Mykhia and Malik, now 11 and 12 years old, were diagnosed with SCD with...
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June
19,
2019
|
10:39 AM
America/Chicago
Are you between 18-44? You could save a life through the Be The Match program. Joining the Be The Match Registry means volunteering to be listed as a potential blood stem cell donor, ready to save the life of any patient in need of a transplant.
Y...
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2017
May
01,
2017
|
00:00 AM
America/Chicago
Recent clinical trial results from the Phase 2 SUSTAIN clinical of a drug known as crizanlizumab have provided new optimism for Sickle Cell Disease patients. The trial may present another option for treating people with severe Sickle Cell Disease who...
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2014
September
15,
2014
|
16:54 PM
America/Chicago
Eleven years ago on March 17, 2003, we were blessed with a beautiful baby boy names Ja'Kiyran McArthur, also known as J.T.Two weeks after he arrived we received a letter from the hospital where Ja’Kiyran was born, stating he had a chronic blood disor...
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