A little more than a year ago, Ambrea Jones knew as much about Pompe disease as most of us who watched President Donald Trump’s first address to a joint session of Congress. During his speech, President Trump introduced Megan Crowley and, in …
From a best-selling book to a movie starring Harrison Ford to President Donald Trump’s first address to a joint session of Congress, Megan Crowley’s life has made for a compelling story.
Megan and her brother Patrick battle Pompe …