October is Down Syndrome Awareness Month. Hear from Alexis Pechek, Unit Secretary, Cook Children's Neonatal Intensive Care Unit, who writes from the heart about her daughter Luciana, now 2.
by Heather DugeTwo days after Abbey Bell delivered her baby girl, Kitson, she turned to a Down Syndrome Facebook page for advice.That is where she found Courtney Morey – a mom who would understand everything she was about to go through. Courtney’s da...
By Jean YaegerBetzavel Segura’s trip to the Down syndrome clinic at Cook Children’s gave the 4-year-old girl the chance to show her skills and her challenges to a variety of specialists. She named the colors she knows. She jumped around. And in a g...
By Jean YaegerThe sunny personalities and determination of Sophie Worsham and Libby Sponsler shine through as the girls and their families deal with the physical challenges and developmental delays of Down syndrome. Sophie, who is 15 months old, has ...
Frank McGehee, M.D., may surprise you when it comes to his parenting tips as a father of four biological children and two step kids – he puts all of the children second.
Dr. McGehee, seen here with his daughter Brigid, became a stepfather of two y...
My older son Ethan and I were having a conversation one day about William. He was asking questions, etc. He said, “Mom, if you could make William NOT have Down syndrome, would you do it?” I said without hesitation, “No, I would not change him.” He sa...
Elmo. Big Bird. Bert. Ernie.
We know these familiar names from Sesame Street like they are family members. Maybe, because they all had a hand in raising most of us.
But now a new character has brought excitement from families of children with d...
Five years ago, Wendy and Jody Gerngross arrived at Cook Children's during Halloween, not exactly in the holiday spirit. After all, they had just learned their then 18-month-old daughter, Jinger Jo, was diagnosed with Acute Myeloid Leukemia in Octobe...